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I think I know where the stats that Dr Kaplan mentioned likely come from. In the second paper the authors say, "QI data analysis revealed four symptoms as most bothersome for ME/CFS volunteers: physical fatigue (40%), mental fatigue (20%), headache (30%), and muscle ache (10%)." So for 4/10...

I looked at the two papers on PEM from Stussman et. al, and also found that the reported data doesn't line up with that quote. In the results section of the qualitative paper based on the focus groups, the authors said, "Of 18 participants who responded to questions centered around symptoms...

I asked my friend who attended the conference about what Dr. Kaplan was referring to when he said that only 40% of patients noted worsening after cardiovascular exercise. She said that "Kaplan said that in the Q&A summarizing what was reported in the Stussman / Walitt qualitative paper on PEM."...

Sure. The auto-renewal on the domain registration didn't work so the domain expired yesterday. I think due to caching the URL worked for some people which is why it seemed like the site was up-and-down.

I'm a volunteer with MEAction but don't do much with MEPedia beyond contribute on occasion. I have a CS background so sometimes help with technical issues with the sites.

ha! This should be fixed now. Thanks for letting us know @Alvin!

I also didn't think I had SFN since I don't have fibromyalgia but my skin biopsy showed a significant reduction in nerve fiber density (my sweat gland density was particularly poor at <20% of the minimum density needed to be in the normal range.) I also have sunburn-like sensations which have...

I heard a reference to the concept at a chronic pain session that I attended yesterday but not in any other sessions. I agree with @JaimeS that when CBT and/or talk therapy has been brought up, it has always been in the context of helping people cope with having one or more life-changing chronic...

I also didn't see it initially but it's on that page under "Feature of the Year (specialist audience)".