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  1. J

    Covid-19 vaccines and vaccinations

    I had the AZ vaccine this week due to being in Category 6. The first day I just had soreness at the injection site and a bad headache. I woke up that night with chills and then intermittent fever and the 2nd day I've had muscle weakness, fever, nausea and a really bad headache. I felt like I was...
  2. J

    Covid-19 vaccination experiences

    I had the AZ vaccine this week due to being in Category 6. The first day I just had soreness at the injection site and a bad headache. I woke up that night with chills and then intermittent fever and the 2nd day I've had muscle weakness, fever, nausea and a really bad headache. I felt like I was...
  3. J

    BPS attempts at psychologizing Long Covid

    I've read Tomlinson's tweets over a number of years. I don't think he has a bad heart, but as a GP he is a longstanding member of a Balint group where GPs get together regularly for group therapy to discuss their feelings about their patients and the experience of being a doctor from a...
  4. J

    A community thermoregulation experiment

    I'm steroid dependent (adrenal insufficiency) and find that shivering is a key sign that my cortisol is too low for my needs (due to tiredness, onset of infection etc.). I also have hypothyroidism so not sure how that plays into things.
  5. J

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    Michael Sharpe is not a psychologist, he's a psychiatrist (medical doctor) so his regulator would be the GMC. I don't think the GMC is usually interested in dealing with "social media" cases like this. You would need a person who is actually a patient of the doctor to complain that they have...
  6. J

    Rod Liddle in the Times: "Always fatigued — yet they never tire of claiming their malady really is a virus"

    This article is a real own goal for the BPS crew - being endorsed by known bigot Rod Liddle, is not a good PR outcome for Sharpe and Wessely. I notice neither of them has retweeted Liddle's article when normally they are very keen to retweet articles in which their work is discussed.
  7. J

    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    Can you give some examples of these neglected diseases that are more predominant in men that continue to be classed by doctors as "psychosomatic" though? There are plenty of poorly researched diseases out there but which ones that mainly affect men lead to men having their symptoms attributed...
  8. J

    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    For me, the obvious gendered angle comes from the way I get treated in consultations. I can't imagine many guys have to sit in consultations where you literally get told by a consultant that "these symptoms are common in women because women are just emotional and anxious.". I know other women...
  9. J

    David F Marks: Psychology - Science or Delusion?

    If anything psychiatry is far worse and it is the major cause of why we are in the mess that we are in. Medicine is the profession that created and continues to cling to an intellectually dishonest schism between "organic" disease and the "functional/psychosomatic/MUS/***" illness and until...
  10. J

    Well-known, famous people with fibromyalgia

    The cyclist is Mark Cavendish. There was a thread here: https://www.s4me.info/threads/mark-cavendish-to-take-indefinite-break-from-cycling-after-virus-diagnosis.5531/#post-100144
  11. J

    Significant association of DNA variants with self-reported ME/CFS (Chris Ponting blog)

    Q1) For us non-sciencey types, does this information about potential issues with the urea cycle relate in any way to Karl Morten's finding of higher levels of phenylalanine in ME patients (...
  12. J

    A new approach to find biomarkers in (CFS/ME) by single-cell Raman micro-spectroscopy, 2018, Morten et al

    I used to work with some people who had severe brain damage due to untreated PKU. They were often in a state of distress but were non-verbal so could only cry out, rock backward and forward or self-harm. It was so sad to think if they'd been screened at birth, they could have led normal lives ...
  13. J

    A new approach to find biomarkers in (CFS/ME) by single-cell Raman micro-spectroscopy, 2018, Morten et al

    Just flicked through the paper - it seems to be a joint project between Newcastle (Tomas and Elon) and Oxford (all the others). Also they say it is a pilot study as they only have 5 patients and 5 healthy controls. The study says that "Blood samples were collected from patients and controls...
  14. J

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Interesting paper. I developed very severe dry eyes around the same time as the onset of ME and haven't been able to wear contact lenses since. I tried asking the ophthalmologist about it but they just said it might be autoimmune due to also having T1 diabetes and just told me to use eye drops...
  15. J

    Ketogenic diet

    Congratulations leokitten - I'm glad you've had such a big improvement. I have been looking into the Keto diet for diabetes purposes but was put off by the fact that so many recipes seem to revolve around dairy products. I have major issues with dairy due to chronic sinusitis and frequent...
  16. J

    BCG Tuberculosis vaccine - and related testing - EpicGenetics

    Faustman Lab released new data for their trial of BCG for reversing longstanding T1 diabetes this past week. I don't have a clue what the discussion in the study means but a drop in Hba1c as a result of getting 2 injections of BCG is definitely interesting for T1 diabetics. The number of...
  17. J

    Mental health trust pulls out of chronic fatigue service - East London Foundation Trust

    Seems like they are recruiting for a Band 8 psychologist with experience in Chronic Fatigue..... http://jobs.homerton.nhs.uk/job/v1027196
  18. J

    Immunoadsorption to remove ß2 adrenergic receptor antibodies in Chronic Fatigue Syndrome CFS/ME (2018) Scheibenbogen et al

    That may be how it works in urban areas but in rural areas there is little option for a reasonable "second GP" opinion. If you live in a small village and the only surgery has one or two doctors and they decide to "collude" with each other then you don't have the option of a second opinion. The...
  19. J

    Healthwise to "retire the GET/CBT topics" from medical content

    Woohoo @Webdog - what a fantastic result - thanks so much for your hard work and persistence in making this happen. :):)
  20. J

    BBC: Chronic fatigue trial results 'not robust', new study says

    She's a national treasure :trophy@. A few years ago I found myself sitting one table away from Penelope Keith while enjoying a cream tea and scone at a National Trust restaurant. I think I never felt so British as I did on that day.:)
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