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I was given a bottle of Villa Maria Pinot Noir for Christmas by someone who doesn't know I am intolerant. It is a red wine. Funny thing is, because I don't drink I don't know how good the wine is or whether Pinot Noir is normally a red wine so I may not even of had to say red wine. It is...

A good reminder Dolphin, thank you. I am glad you are taking care for yourself and thank you for all your contributions. I have always had a fear of public speaking and posting on a forum like this gives me lots of anxiety. If I have ever said anything awful to anyone please, I am sorry. I don't...

I'm not really up to posting but just briefly, when I got ME/CFS I didn't know I had it and I tried to keep working which was the worst thing I could have done. I got sicker and sicker and collapsed six years later with very severe ME. For me the early onset of ME/CFS reset to a baseline to one...

Really like this one. 'Affects' is much better than devastates. It is more temperate and keeps interest in my view.

I really like this original. I'm not keen on "ME/CFS devastates millions". Some people switch off and don't want to know more because there is so much of it around calling for our attention. Where the original version intrigues me to know more. Just my thoughts. I could be wrong.

Could someone start a new thread at some point for preferred terminology. I have recently changed to ME/CFS instead of ME. I do take the time to consider change and whether I agree so I don't just follow without thinking about it. I miss a lot of discussion and would like to know what...

I think the way wrote the above was being a bit too hard on my GP, she did refer me to a hospital specialist and probably would have continued with other specialists but communication wasn't that great in expressing that to me. I thought after that first specialist we were at a dead end.

I noticed this same sort of thing in my early years of ME/CFS when I didn't know I had it but knew something was very wrong. Repetitive use was causing a problem I hadn't experienced before. You probably already had ME/CFS and were experiencing the effects of exertion and repetition. I think...

I should have add to my post that the first night of a cold can be one where I don't get much sleep due to the runny nose, sneezing, so I can feel tired the next day because of that. Otherwise my post above stands. I will observe more closely when I get a cold or Covid again.

The whole first week of a cold, 1-7 days. Then the ME symptoms come back around the 8th day. I think I am pretty much free of ME symptoms. I think clearly. I feel like I am back to normal with the healthy spring in my step that I once had before ME. I don't seem to get PEM. For me it feels...

@poetinsf I've experienced instances of feeling better like that too over the years and I have read of other members posting about it too from time to time. I remember in my sickest years thinking I was coming right in the evenings sometimes. I've also been away and surprised I didn't have...

I can't remember the exact wording now but I read somewhere that going to the doctors is like having to present a case. That can be very stressful and cause an anxiety when very sick. We are patients of all walks of life not lawyers who are used to presenting a case. I wonder how lawyers feel...

I remember we had Covid at the same time last year and pretty much along the same timeline as well. Thanks for joining me on that thread (and everyone else too) because it really helped me not feel so alone and concerned. Yes, I was in shock for about a week when I actually could feel the brain...

I have something really strange that has been happening for quite a few years and that is once in bed for the night and I get hot and move my feet out of bedding to the cool air I suddenly get a pain like ache in my feet and quickly put my feet back under the bedding. It happens really quick...

Same.

I just want to acknowledge that my posts above were written without knowledge of a post that had been deleted before my above responses, hence the confusion. Sorry about this.

Ok, so it sounds like we are judging someone who must have been moderate and needing to sleep in the afternoons? I have always had severe insomnia with my ME and I remember in those years feeling like I could go off to sleep in the afternoon and I remember falling asleep a couple of times and...

. I don't but I'm not really understanding what you are implying here? I use moderate to describe my ME/CFS but I have stated in a post on the forum that I don't really know where I am in this illness right now. I could be mild, though it does not feel mild because I know if I were to try to...

I noticed I was needing to drink a lot of water in my severer years. The ME felt very dehydrating.

Just to add more to my post. For me PEM is what messes with my sleep mechanism. The severer the ME PEM the less sleep I get. So it is all about severity level of ME. I'm not sure if using 'unrefreshing sleep' describes ME well because it can sound like you just need to sleep more when it is...