Scott and all, many thanks indeed--this is really great news! Don't know if I can be of any help--am now 86, and that and ME don't leave me much of anything, but I try to more or less keep up with the resarch, and can still write a bit. Chris
I recall one or two papers from Julia Newton's group that included explicit statements that "this is not consistent with deconditioning" but don't have the energy to find them right now--sorry!
I think it is called Ataxia; I have a bit of that problem too, but find that walking with Nordic walking poles improves things quite a lot--have you tried them? If you do, experiment with adjusting the length until you use them to propel yourself forwards rather than use them as supports for a...
Like many of you, I would guess, I am already taking all the elements of his "neutraceutical", except "the sodium salt of one of the halogenated organic acids present in a particular genus of algae"--do any of you knowledgeable people have a clue as to what that might be? The others that I am...
@Binkie4; a couple more points. I had no talks with an anaesthetist before my last surgery that I recall--but it was an emergency situation--I knew something was going wrong, but it took three tries before Emergency took me seriously enough to admit me, by which time I had accumulated over 2...
@Binkie4; on RF, you might start by reading Martin Blank's excellent little book, "Overpowered." Or go to Youtube and check out some of Devra Davis's talks--she tends to focus just on cell phone stuff (well covered by her book "Disconnect") but there are also now WiFi, "smart" meters, etc. etc...
@Binkie4--my best guess is that my ME was triggered by my move into a apt near the top of the tallest building in central Victoria (as of 2006)--crowned with a bristle of antennae of various shapes and sizes. When I began to suspect this I rented a Stetzer meter and found VERY high levels of...
@Binkie4; thanks for your good wishes. The first surgery in 2004 was before ME, and I had a good 2 1/2 years before it hit me--the surgery returned me almost to my previous--healthy and active-state. Then 10 years of ME--large remission in the first year, none since, and a decline towards the...
I think there is a problem, though I have approached it from the other side, as it were--after 70 very active and healthy years, I developed a "severely stenotic" aortic valve, and had to have surgery. There followed 2 good years, and then at 74 I developed ME. One of my first reads was Paul...
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