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    Building Relationships: Meeting with Canadian Health Minister

    Scott and all, many thanks indeed--this is really great news! Don't know if I can be of any help--am now 86, and that and ME don't leave me much of anything, but I try to more or less keep up with the resarch, and can still write a bit. Chris
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    What are the 'missing' research papers based on existing data that we wish scientists would write about ME/CFS?

    I recall one or two papers from Julia Newton's group that included explicit statements that "this is not consistent with deconditioning" but don't have the energy to find them right now--sorry!
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    May 3-5 2018: Canadian conference on ME/CFS research priorities, Montreal

    @Sasha--thanks for this--will be tempted to fly back to my lovely home town to take this in, if I feel up to it by then--probably not, but ...
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    Does anybody else walk as though they're drunk?

    I think it is called Ataxia; I have a bit of that problem too, but find that walking with Nordic walking poles improves things quite a lot--have you tried them? If you do, experiment with adjusting the length until you use them to propel yourself forwards rather than use them as supports for a...
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    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    Like many of you, I would guess, I am already taking all the elements of his "neutraceutical", except "the sodium salt of one of the halogenated organic acids present in a particular genus of algae"--do any of you knowledgeable people have a clue as to what that might be? The others that I am...
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    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    @Binkie4; a couple more points. I had no talks with an anaesthetist before my last surgery that I recall--but it was an emergency situation--I knew something was going wrong, but it took three tries before Emergency took me seriously enough to admit me, by which time I had accumulated over 2...
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    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    @Binkie4; on RF, you might start by reading Martin Blank's excellent little book, "Overpowered." Or go to Youtube and check out some of Devra Davis's talks--she tends to focus just on cell phone stuff (well covered by her book "Disconnect") but there are also now WiFi, "smart" meters, etc. etc...
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    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    @Binkie4--my best guess is that my ME was triggered by my move into a apt near the top of the tallest building in central Victoria (as of 2006)--crowned with a bristle of antennae of various shapes and sizes. When I began to suspect this I rented a Stetzer meter and found VERY high levels of...
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    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    @Binkie4; thanks for your good wishes. The first surgery in 2004 was before ME, and I had a good 2 1/2 years before it hit me--the surgery returned me almost to my previous--healthy and active-state. Then 10 years of ME--large remission in the first year, none since, and a decline towards the...
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    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    I think there is a problem, though I have approached it from the other side, as it were--after 70 very active and healthy years, I developed a "severely stenotic" aortic valve, and had to have surgery. There followed 2 good years, and then at 74 I developed ME. One of my first reads was Paul...
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