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  1. Liessa
    Post

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    We do. Every time something like this comes out is a new chance more people will take note of the updated info. Also it will be helpful if these...
    Post by: Liessa, Nov 15, 2021 in forum: Resources
  2. Liessa
    Post

    Cerebral Blood Flow Is Reduced in Severe ME/CFS Patients During Mild Orthostatic Stress Testing. van Campen et al. 2020

    Well there was this earlier study where they found differences in CI and SV to be the same irregardless of severity and accompanying activity...
    Post by: Liessa, Jun 14, 2020 in forum: ME/CFS research
  3. Liessa
    Post

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    Also the opposite. There are plenty people who did grow up in war zones and did hug mutant crocodiles who aren't sick. It is so easy to imply...
    Post by: Liessa, Aug 9, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Liessa
    Post

    REC advice on PACE trial data changed in favour of release

    It's not really about having power over anyone. PLOS used the REC's previous position to justify their decision to not enforce the datasharing....
    Post by: Liessa, Jul 14, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Liessa
    Post

    REC advice on PACE trial data changed in favour of release

    As far as I understand this is not so much 'forcing to release', as it is taking away reasons not to. Publishing in PLOS comes with a mandatory...
    Post by: Liessa, Jul 14, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Liessa
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Acknowledging the elephant may turn a spotlight on other members of its species which exist at least in other flavours of CBT research according...
    Post by: Liessa, Jul 6, 2019 in forum: General ME/CFS news
  7. Liessa
    Post

    Orthostatic Intolerance in chronic fatigue syndrome, 2019, Garner and Baraniuk

    This is assuming the compensatory increase in HR is sufficient. In my experience, this is definitely not always the case. Also there is a thing...
    Post by: Liessa, Jun 10, 2019 in forum: ME/CFS research
  8. Liessa
    Post

    Abnormal changes during Tilt Table Test in ME/CFS patients are NOT related to deconditioning

    I think I may have found the answer to your question. I think the first statement refers to an action (seeing how these factors relate to one...
    Post by: Liessa, Jun 10, 2019 in forum: ME/CFS research
  9. Liessa
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you @Michiel Tack for documenting some of your research thoughts on this. Very helpful, and I especially appreciate that you included...
    Post by: Liessa, May 24, 2019 in forum: ME/CFS research news
  10. Liessa
    Post

    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    Leave it to these nice BPS people to alleviate you of that 'feels like being ill' idea :rolleyes: But yes I agree. Goes for sore muscles as well....
    Post by: Liessa, Mar 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Liessa
    Post

    CORRESPONDENCE The PACE trial of treatments for chronic fatigue syndrome: a response to WILSHIRE et al (2019) Sharpe, Goldsmith & Chalder

    Such a great response with many well reasoned points that ought to be obvious. One point in particular that never ceases to amaze me is where...
    Post by: Liessa, Mar 18, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Liessa
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Yes I came across this 'synonym' in a GP code directory at some point. Let's hope things will improve now that the Gezondheidsraad has basically...
    Post by: Liessa, Feb 6, 2019 in forum: Disease coding
  13. Liessa
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    Yes exactly. I think we fully agree :) My point was not "this is what people are convinced of rationally", but that a sense of "that's how we...
    Post by: Liessa, Feb 3, 2019 in forum: General ME/CFS news
  14. Liessa
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    I was looking at this page listing potential cognitive biases, and while I can see lots of them applying in one way or another to the whole BPS...
    Post by: Liessa, Feb 2, 2019 in forum: General ME/CFS news
  15. Liessa
    Post

    Trial By Error: Bristol Investigating Crawley Papers

    Not putting any eggs in the SMC basket. But this seems like the sort of situation Retraction Watch may find interesting.
    Post by: Liessa, Feb 1, 2019 in forum: General ME/CFS news
  16. Liessa
    Thread

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders [MEDIA] First 20 minutes are an introduction and...
    Thread by: Liessa, Feb 1, 2019, 0 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  17. Liessa
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    Then again a real journalist would also make sure he/she is on the right side of the good/bad science arguments.
    Post by: Liessa, Jan 31, 2019 in forum: General ME/CFS news
  18. Liessa
    Post

    Trial By Error: Bristol Investigating Crawley Papers

    Seems like the strategy is stretching this into infinity. Ignore it for as long as you can, throw in a "yea yea we're on it, you must understand...
    Post by: Liessa, Jan 31, 2019 in forum: General ME/CFS news
  19. Liessa
    Post

    Trial By Error: Action For ME’s Employment Advice

    Sometimes alternative spelling is fun. I quite like this 'paraidgm' word :geek: @dave30th English is not my first language but I think there may...
    Post by: Liessa, Jan 23, 2019 in forum: General ME/CFS news
  20. Liessa
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    You are right. I too still find it hard to take the amount of rest I should, especially as the results take ages to show. However, in the first...
    Post by: Liessa, Jan 17, 2019 in forum: General ME/CFS news
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