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We do. Every time something like this comes out is a new chance more people will take note of the updated info. Also it will be helpful if these messages will at some point be more prevalent than the ubiquitous 'meh behavioural issue just therapy&exercise already' crap that is still basically...

Well there was this earlier study where they found differences in CI and SV to be the same irregardless of severity and accompanying activity level (with mild patients doing a lot more steps per day and thus being less deconditioned, etc)...

Also the opposite. There are plenty people who did grow up in war zones and did hug mutant crocodiles who aren't sick. It is so easy to imply 'correlation' when there are so many people who have Life Stuff happening to them at one point or another. This all just feeds into the biggest lie of...

It's not really about having power over anyone. PLOS used the REC's previous position to justify their decision to not enforce the datasharing. Now that this position has changed, this rationale doesn't hold up anymore. @JohnTheJack has asked PLOS to reconsider, given this change.

As far as I understand this is not so much 'forcing to release', as it is taking away reasons not to. Publishing in PLOS comes with a mandatory promise to share data on request. However PLOS has previously elected not to enforce this promise. While I'm not completely clear on the details, I...

Acknowledging the elephant may turn a spotlight on other members of its species which exist at least in other flavours of CBT research according to https://www.psychologytoday.com/gb/blog/matter-personality/201907/cognitive-behavioral-therapy-evidence-base-is-exaggerated and some well referenced...

This is assuming the compensatory increase in HR is sufficient. In my experience, this is definitely not always the case. Also there is a thing with less efficient circulation if the heart doesn't get enough time to fill in between beats. Ivabradine made me slightly more clearheaded, which may...

I think I may have found the answer to your question. I think the first statement refers to an action (seeing how these factors relate to one another), and the second to the outcome. The last paragraph of section 4 explains how they went about things, which I can link to the first of your...

Thank you @Michiel Tack for documenting some of your research thoughts on this. Very helpful, and I especially appreciate that you included sources :thumbsup: I too do see some overlap, however... Early on in this thread someone mentioned out of ME patients who had this checked, 90% qualified...

Leave it to these nice BPS people to alleviate you of that 'feels like being ill' idea :rolleyes: But yes I agree. Goes for sore muscles as well. The 'after using them more than they are used to' pain is worlds apart from the heavy drained no-energy-to-move soreness of PEM. Good thing we are...

Such a great response with many well reasoned points that ought to be obvious. One point in particular that never ceases to amaze me is where they accuse the reanalysis of 'not using an a prirori analysis plan'. So... their change is fine because they simply felt it was better this way, but if...

Yes I came across this 'synonym' in a GP code directory at some point. Let's hope things will improve now that the Gezondheidsraad has basically endorsed the IOM conclusions on ME/CFS. Is there any place I should watch for updates on this Dutch version?

Yes exactly. I think we fully agree :) My point was not "this is what people are convinced of rationally", but that a sense of "that's how we wish it would be" is enough to colour peoples receptiveness for explanations that fit this. This is normal, and the reason we should learn about biases...

I was looking at this page listing potential cognitive biases, and while I can see lots of them applying in one way or another to the whole BPS situation, the one that stood out was the 'just world hypothesis'. The idea that the world is fair seems to play a large role not only in the theory...

Not putting any eggs in the SMC basket. But this seems like the sort of situation Retraction Watch may find interesting.

Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...

Then again a real journalist would also make sure he/she is on the right side of the good/bad science arguments.

Seems like the strategy is stretching this into infinity. Ignore it for as long as you can, throw in a "yea yea we're on it, you must understand our difficulties" rinse, repeat. Good thing @dave30th is tenacious :thumbup:

Sometimes alternative spelling is fun. I quite like this 'paraidgm' word :geek: @dave30th English is not my first language but I think there may be a singular/plural thing going on with the clinical service in this sentence: "Unfortunately, it is hard to trust much of the information coming...

You are right. I too still find it hard to take the amount of rest I should, especially as the results take ages to show. However, in the first few years (before learning about this CFS/ME business) I was doing my best to do whatever my GP told me, and had he explained the possibility of...