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    Scottish ME/CFS clinical service provision

    The former homeopathy hospital provides services for ME / CFS and other conditions, including LP. Woo central
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    Psychological symptoms predict long coronavirus disease 2019: a prospective analysis from the Women’s Health Initiative, 2026, Al-Delaimy et al.

    Has there been a comparable male study?
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    Feasibility and acceptability outcomes of the InMe trial - ...participants with subclinical eating and somatic symptom disorders 2026 Bobou et al

    Would this factor into severe ME/CFS patients with eating issues ?
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    Scottish ME/CFS clinical service provision

    From The Covid 19 Recover report (2023) - the rehab model is alive and well. Despite all the evidence that it is neither effective nor harmless. I suspect that nothing has changed much since then, but now there are funds. I would love to be proved wrong. Janet Scott: My colleagues in health...
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    Scottish ME/CFS clinical service provision

    I would like to give her the benefit of the doubt, however we seem to be heading down the BACME route with nothing learned, and she seems to have swallowed the FND pill without much question. Perhaps chasing the research money means you have to be seen to be agreeing with certain people to gain...
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    Brain network discovery opens new path for Parkinson’s treatment

    https://www.news-medical.net/news/20260204/Brain-network-discovery-opens-new-path-for-Parkinsone28099s-treatment.aspx SCAN - the somato-cognitive action network Treating
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    Scottish ME/CFS clinical service provision

    I was right to be worried .
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    Scottish ME/CFS clinical service provision

    Note from AfME - they did not support the grant application as they could not resource it.
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    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Ego
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    Scottish ME/CFS clinical service provision

    Yes.They are engaging re clinical service, but given the lack of involvement prior I don't know how much influence they could weild
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    Scottish ME/CFS clinical service provision

    This is the MEA s proposal . Given they seem to be working hand in hand with BACME and app developers it's a bit like the King is dead , long live the King .
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    Scottish ME/CFS clinical service provision

    No. Not yet. This is partly why I started this thread as there seems to be various initiatives that could coalesce , and it may not be positive , though folks don't seem to want to be aware of pitfalls. I'm probably one of those categorised as " overly negative" . It's not really been...
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    Scottish ME/CFS clinical service provision

    I believe Janet Scott has applied for funding to establish a platform for treatment trials .
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    The landscape of hereditary haemochromatosis risk and diagnosis across the British Isles and Ireland 2026 Wilson et al

    You can be a carrier ( have 1 of the genes) - I know of two family members who are carriers and have higher than normal iron levels. Australia has a high Haemochromatosis level reflecting the exodus of celts over the past 2-300 years- I believe their genetic testing is slightly different. ( I've...
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    Scottish ME/CFS clinical service provision

    Preceding posts have been moved from the News from Scotland thread I'm starting a thread , kicking off from my post in News from Scotland. https://www.s4me.info/threads/news-from-scotland.19044/post-671122 Given there is virtually no service provision here this is a huge opportunity -it's my...
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    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    But the label can make you less " believable" if you present with one .
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    Why some people with ME/CFS react more strongly to medications

    Hydrocortisone ( oral) and cocodamol wreak havoc. Drugs / products with synthetic vit E cause issues ( it has a distinctly different molecular shape ) It may be the " getting rid of" aspect that is the issue .
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    Pros and cons of genetic studies of families who have multiple members with ME/CFS

    Perhaps it's a combination of gene expression that's common , not one single gene?
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    Fred Rossi - Writings related to ME/CFS

    Another good article from Fred Rossi https://open.substack.com/pub/centerleftstack/p/size-matters-not?utm_source=share&utm_medium=android&r=1d5w3s
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    Was our ME/CFS inevitable?

    Perhaps research into families with multiple member with ME/CFS may shed some light on some of the factors which may make this more likely. My aunt and my daughter both have ME. personality trait wise they are like peas in a pod. Also have similar issues with skin, painful periods, headaches. My...
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