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  1. Forestvon
    Post

    Pacing - what do you do/how would you describe it?

    What stops me pacing well Unexpected energy demand later in day, plus needing to do more because carers so shorthanded, nearing retirement and...
    Post by: Forestvon, Jun 9, 2023 in forum: Monitoring and pacing
  2. Forestvon
    Post

    Pacing - what do you do/how would you describe it?

    Reaching up and lifting heavy things above head is worst thing you can do if you have orthostatic intolerance ie standing especially standing...
    Post by: Forestvon, Jun 9, 2023 in forum: Monitoring and pacing
  3. Forestvon
    Post

    United Kingdom: BT Home Essentials broadband for people on specific benefits

    I have same problem with BT in rural area. Cant trust the checker.
    Post by: Forestvon, May 20, 2023 in forum: Work, Finances and Disability Insurance
  4. Forestvon
    Post

    Anyone has a stair lift at home ? (Moving, part II)

    I havent needed one as had to get a new one at start of pandemic when old one packed up for lack of electronic parts but may do this year so will...
    Post by: Forestvon, May 15, 2023 in forum: Home adaptations, mobility and personal care
  5. Forestvon
    Post

    Anyone has a stair lift at home ? (Moving, part II)

    No never as couldn't go up without it. Now I roll up washing and hold it in my arm while bag containing ipad etc hooked over the arm - if cant do...
    Post by: Forestvon, May 9, 2023 in forum: Home adaptations, mobility and personal care
  6. Forestvon
    Post

    Journo found Uk cfs clinics urged to manipulate figures to keep funding

    But cfs clinics were mainly run by psychs and ran same risks
    Post by: Forestvon, May 4, 2023 in forum: UK clinics and doctors
  7. Forestvon
    Post

    Journo found Uk cfs clinics urged to manipulate figures to keep funding

    Hooray found the link https://www.independent.co.uk/news/health/nhs-therapists-patients-manipulate-data-b1908629.html
    Post by: Forestvon, May 4, 2023 in forum: UK clinics and doctors
  8. Forestvon
    Post

    Public urged to wear face masks again as new Covid sub-variant sweeps Britain

    i think worth it if you go to an indoor crowded place
    Post by: Forestvon, Apr 30, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  9. Forestvon
    Thread

    Journo found Uk cfs clinics urged to manipulate figures to keep funding

    I cant access the link I had to an article some time ago in possibly the independent but unsure saying that cfs clinics in the uk were urged to...
    Thread by: Forestvon, Apr 29, 2023, 9 replies, in forum: UK clinics and doctors
  10. Forestvon
    Thread

    GET dropouts not followed up survey

    Some time ago there was a survey sent to CFS clinics in the UK asking if they followed up dropout patients to see if they dropped out because...
    Thread by: Forestvon, Apr 29, 2023, 1 replies, in forum: UK clinics and doctors
  11. Forestvon
    Post

    Crowdfunding: Trial By Error: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Spring 2023

    Project ends on April 30, at 11:55 PM PDT gets confusing for different countries who dont have 4 days left because of time difference.
    Post by: Forestvon, Apr 26, 2023 in forum: Fundraising
  12. Forestvon
    Post

    Has the arrival of Long Covid strengthened or weakened the influence of psychosomatic medicine? Discussion thread

    The main psych proponents have based their whole careers on it so that is why they are so resistant, they are in high places and also teach at med...
    Post by: Forestvon, Apr 13, 2023 in forum: Psychosomatic theories and treatments discussions
  13. Forestvon
    Post

    First time finding a carer

    @Trish said 'What you describe sounds like it would be better described as a personal assistant rather than a carer.' I heartily agree. My carers...
    Post by: Forestvon, Mar 24, 2023 in forum: Home adaptations, mobility and personal care
  14. Forestvon
    Post

    L-carnitine, tryptophane and d-ribose

    i thought it helped but has anyone got a good source. Am in UK. cant remember where I got the first lot, possibly drMyhill online but when it...
    Post by: Forestvon, Mar 5, 2023 in forum: Drug and supplement treatments
  15. Forestvon
    Post

    Severe difficulties with eating in ME/CFS

    I thought I read somewhere a problem could be the angle at which the tube was inserted in severe case of ME if they have bad orthostatic...
    Post by: Forestvon, Feb 27, 2023 in forum: ME/CFS research
  16. Forestvon
    Post

    ME Awareness Day / Week / Month, May 2022

    Thank you. I keep seeing where it could have been better and we had to finish quickly as her battery was low. It certainly wasnt my idea to put...
    Post by: Forestvon, May 10, 2022 in forum: Advocacy Projects and Campaigns
  17. Forestvon
    Post

    Flat sheets versus fitted sheets

    I have a deeper fitted sheet on the bottom and a flat sheet on top to save changing duvet cover as often. Re returning sheets after lying on them...
    Post by: Forestvon, Mar 6, 2022 in forum: Home adaptations, mobility and personal care
  18. Forestvon
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    thank you @Noir It took me to a webpage so not sure if needed to click anything on it. still cant get google translate to be online. Eg...
    Post by: Forestvon, Jan 28, 2022 in forum: Petitions
  19. Forestvon
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    I think I signed but when there was an error, I ticked the hear anout updates box. Then got this long email but google translate not working as...
    Post by: Forestvon, Jan 27, 2022 in forum: Petitions
  20. Forestvon
    Post

    Gary Burgess - The ME show, and updates about Gary's health.

    I saw this on twitter yesterday about a visit from his dad. [MEDIA] If you are reading this, very much love to you all, Gary.
    Post by: Forestvon, Dec 22, 2021 in forum: General ME/CFS news
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