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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yes these guidelines are an improvement but there are areas of serious concern for children. School guidelines are poor and non specific and will not protect children from all the misconduct, abuse, reporting for attendance issues. A lot of work and detail is needed to protect children. The...
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    SMILE trial data to be released

    As a parent of a child thank you sincerely, anything that Ester Crawley was involved in needs to scrutinised , so many children are harmed daily, have no quality of life and are abused and dismissed because of her awful trials. This has made my day.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    The biggest risk factor is to children and there is a clear lack of proper representation at Paediatric level , Dr Speight needs to be on this panel. There is horrific abuse of children in schools,clinics and hospitals throughout the U.K. Most adults with ME would be horrified if they knew what...
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Praying for more good people who will work with integrity, I have had enough of all the corruption and profound damage to so many adults, children and families.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Dr Weir phoned Hope for ME N Ireland charity and they have just posted it.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Dr Weir has been appointed to the committee with full voting rights
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    Legal Precedent against GMC in a child with ME!!

    https://www.theguardian.com/society/2006/may/01/childrensservices.uknews A judge has instructed the GMC to relook at a complaint against two Paediatrician's who accused a family of Fii with a child with ME.
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    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    http://l.facebook.com/l.php?u=http%3A%2F%2Fwames.org.uk%2Fcms-english%2F2017%2F03%2Fis-health-anxiety-aka-hypochondria-common-in-people-with-cfs%2F&h=ATOAzEJmjrdXDP0y71BfKoJfbQ8oTCMME33yMCkoOxB5yDVcHEKxMo6zMzC0glOI8Tkvi4wwH7NcPGXHTQYMiULsYEKlXOKFvy4Kk6oO0lj83ZQ&s=1 The author of this trial is...
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    Esther Crawley

    Esther Crawley's new role as Director of Child and Adolescent Health!! aagghh http://www.bristol.ac.uk/ccah/news/2018/leadership-change.html
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    Proposed Letter to NICE

    Excellent letter. Do you think we can add a sentence stating that ME has to be recognised as a biomedical condition and investigations and treatments proposed by the new NiCE guidelines must be biomedical and all psychological, psychiatric are a form of health discrimination. Failure of NICE to...
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