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This is a ridiculous price. You could make your own. Dxm is over the counter and quinine is easy enough to get . Alka Seltzer Gold worked wonders. I used it for 2 years. This was horrible when it happened. I did recently have a round of neurophysiological testing and I tested fine. No permanent...

The uniforms should be cleaned ASAP. All the high talk of about hero’s and they are not given protection. In my personal me/ fibromyalgia journey I discovered that we must inform ourselves of chemical exposures and harm ( for example roundup). Prior to becoming ill I would have thought it...

When I was at my most ill. I always felt much better with a cold. I also would give myself poison ivy on purpose . This greatly alleviated my cfs symptoms.

Still doing Dynamic Retraining. I actually stopped it for about a few weeks but felt myself slipping. At the back of my mind I felt like a jackass practicing these recitations but while actively practicing I noticed slight improvements . Since doing the retraining I have been sleeping indoors...

I will admit I am practicing Dynamic Neural Retraining. That said I had improved about 80% prior to when I started the program last week. I would get brain fog and have reactions if I remained indoors for too long. My sense of smell is not sensitive at all just the opposite. I have lost a lot...

My mother suffered from epilepsy. (1950’s) She was taken to a doctor that treated mainly psychological illnesses. Her cousin talked her into going to a neurologist at University of Pennsylvania. Was put on correct medication for grand mal seizures and never has another seizure. It is...

Celebrex alone does nothing for me personally for fibromyalgia pain. I would put it with nsaids. Prostaglandin inhibition for myself does nothing for the fibromyalgia pain I had. Believe me I wish it did.

This is truly disgusting. Thank goodness for the Internet. Hopefully will bring pressure and embarrassment to the government’s that allow this .

I did valtrex ( very similar to Famvir) and Celebrex . I still pulse this if fibromyalgia acts up. This combo greatly decreased my fibromyalgia pain. Glad to at least see some studies starting. I think “ ibs” and Fibromyalgia may be caused by latent viruses that get reactivated ( in my case I...

My “ ibs” went into a brief remission after Xiafaxamin. It came back. After leaving my moldy house and possessions behind I no longer have “ ibs” . I had ibs for about 30 years. I think in my case it is sensitivity to my environment nothing to do with emotional issues which was rammed down my...

I agree Webdog according to medicine my health is good even though I am disabled. Mermaid I do not accept this either. I will do anything that seems plausible to get better. If you told me treatment that would get me better would shorten my life I would not care.

Ugh! We need good unbiased studies. True mold/ chemical avoidance is very unprofitable. I did try to go to doctors and they are willing to “ treat” me with expensive unproven treatments. Not sure if anything worked at all except sleeping outside to avoid indoor “ air pollution “ whatever it is...

I worked as a community pharmacist and often was the unofficial triage. I had no diagnostic training and did not feel comfortable in this role but in many cases the answer was obvious. I think there should be st least rudimentary training since I was the only healthcare provider standing on the...

My experience is just that my individual experience. There is a lot of bs posing as “ science.”

I hope more research is done on this topic. Or at the very least more awareness. I improved greatly by doing a “ mold “ sabbatical as discussed in paradigm change. I stayed away for 3 weeks . After 2 weeks in the desert my cfs was in remission . Came back to NJ ill with cfs again in a month...

Same here. When I was at my worst with this illness my “ ibs” was off the charts.

I pulse with valcyclovir 500mg twice a day and celexicob ( Celebrex) 200mg twice a day. I had high IGG titer s for Epstein Barr . I never had any invasive or extensive testing. My family doctor gave me this combo . I took it for 6 months straight at first. Now I pulse if I notice the...

This sounds terrific. Taking it to the masses.

Justy I am very sorry . This can be horrible and is very Embarrassing. You are not alone. I had similar episodes. I don’t think mine were true pseudobular effect but I would get uncontrollable sobbing and bang my head on the kitchen counters. I was not upset about anything. These would come on...