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  1. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DG-jIY-Myjy?xmt=AQGz9HW2BOLCB1poK23JFlrjiIZz-KxTwcgqseQSsXbfzg
    Post by: Tom Kindlon, Mar 9, 2025 at 12:04 PM in forum: Advocacy Projects and Campaigns
  2. Tom Kindlon
    Post

    Do graded activity therapies cause harm in chronic fatigue syndrome? (Kindlon, 2017)

    Not sure if I have said this much but this was written for the PACE Trial special issue. The original title had the PACE Trial in it because that...
    Post by: Tom Kindlon, Mar 8, 2025 at 7:58 PM in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Tom Kindlon
    Post

    Lightning Process - discussion thread

    A reply: Mads ‪@blueforpwme.bsky.social‬ Meant to add that I also tried the LP back in 2010/11 and felt like a superhero for a few weeks then...
    Post by: Tom Kindlon, Mar 5, 2025 in forum: Psychosomatic theories and treatments discussions
  4. Tom Kindlon
    Post

    Lightning Process - discussion thread

    Adverse reaction following the Lightning Process shared today on my FB page Because participants are programmed to say they are well and not...
    Post by: Tom Kindlon, Mar 4, 2025 in forum: Psychosomatic theories and treatments discussions
  5. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DGshCx8MaeQ
    Post by: Tom Kindlon, Mar 2, 2025 in forum: Advocacy Projects and Campaigns
  6. Tom Kindlon
    Post

    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    We have been on previous committees the HSE have had including one that ran from 2019 for a few years that led on to this process. But weren’t...
    Post by: Tom Kindlon, Feb 25, 2025 in forum: Other guidelines
  7. Tom Kindlon
    Post

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I've started a new thread on this here: HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)
    Post by: Tom Kindlon, Feb 24, 2025 in forum: Regional news
  8. Tom Kindlon
    Post

    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    I believe the guidelines committee was due to start in November 2024. The Irish ME/CFS Association was not contacted to suggest a member so we...
    Post by: Tom Kindlon, Feb 24, 2025 in forum: Other guidelines
  9. Tom Kindlon
    Post

    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    I believe that ME Advocates Ireland would like separate guidelines for ME and CFS. I'm not sure the current position of the guidelines committee....
    Post by: Tom Kindlon, Feb 24, 2025 in forum: Other guidelines
  10. Tom Kindlon
    Post

    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    https://www.hse.ie/eng/about/personalpq/pq/2024-pq-responses/april-2024/pq-19209-24-cathal-crowe.pdf 15th May, 2024 Deputy Cathal Crowe, TD Dáil...
    Post by: Tom Kindlon, Feb 24, 2025 in forum: Other guidelines
  11. Tom Kindlon
    Post

    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    Also from: https://meadvocatesireland.blogspot.com/2022/09/news-from-hse-re-clinical-guideline-for.html 3) HSE letters about the Clinical...
    Post by: Tom Kindlon, Feb 24, 2025 in forum: Other guidelines
  12. Tom Kindlon
    Thread

    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    Yes, a good article . Thanks to James and Emily; they did a great job with their quotes. I didn't understand this bit. Can anyone explain what...
    Thread by: Tom Kindlon, Feb 24, 2025, 14 replies, in forum: Other guidelines
  13. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DGanGGkMN9G
    Post by: Tom Kindlon, Feb 23, 2025 in forum: Advocacy Projects and Campaigns
  14. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DGIlg-qMaUJ?xmt=AQGznFgTttqg7TyKdWsxth8RrNGA308AFpmBDKUs29dLzg
    Post by: Tom Kindlon, Feb 16, 2025 in forum: Advocacy Projects and Campaigns
  15. Tom Kindlon
    Post

    Open Australia - Victoria: “Bottom-up”: linking the gut microbiota, immune system and metabolism in ME/CFS - Missailidis, La Trobe

    Now shared on Facebook in case anyone wants a post to share there: Also: https://bsky.app/profile/tomkindlon.bsky.social/post/3lhwcke6qyk2i
    Post by: Tom Kindlon, Feb 11, 2025 in forum: Recruitment into current ME/CFS research studies
  16. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DF2izn8MDT8
    Post by: Tom Kindlon, Feb 9, 2025 in forum: Advocacy Projects and Campaigns
  17. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DFkdSIGsbc6?xmt=AQGzeJ613s_GOLFeQAbNKGbgg7T2wd7a3LVknDNg-q_Hqw
    Post by: Tom Kindlon, Feb 2, 2025 in forum: Advocacy Projects and Campaigns
  18. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DFSeReIsgJD?xmt=AQGzsQq1OfHagFjcz573DOPH4MVNzC-9QSDxgFNVeFoayQ
    Post by: Tom Kindlon, Jan 26, 2025 in forum: Advocacy Projects and Campaigns
  19. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads https://www.threads.net/@tomkindlon/post/DFAq4CRMOCS
    Post by: Tom Kindlon, Jan 19, 2025 in forum: Advocacy Projects and Campaigns
  20. Tom Kindlon
    Post

    International: Science for ME social media posts

    Threads: https://www.threads.net/@tomkindlon/post/DEujPW3ML3W?xmt=AQGzN4-hlM5yO_P6Xff-DLd6Oh9au0rHPn3GkS9wixw5wg
    Post by: Tom Kindlon, Jan 12, 2025 in forum: Advocacy Projects and Campaigns
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