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  1. Sean

    Norway: 2026 Guidelines for chronic fatigue and ME/CFS - draft published

    This is not going to end well.
  2. Sean

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    And like most gossip it tends to be malicious. Now there is a cultural echo from the past. I wonder how many here know who he was. he he :sneaky:
  3. Sean

    Healthcare worker fatigue during COVID-19, SARS, and MERS: a meta-analysis 2026 Chalder et al

    Shh. Don't mention the 4 billion ton gorilla in a neon pink tutu in the room.
  4. Sean

    Treatment effects of multimodal inpatient psychotherapy for post-COVID patients: First results from a non-randomized, controlled study, 2026, Koller+

    Outcomes were assessed at baseline (T0) and after five weeks (T1). On subjective self-report outcomes, after just five weeks treatment for a condition known to last years (and potentially a lot longer), via an inpatient program designed to get patients to report better scores on subjective...
  5. Sean

    The patronising attitude of holistic medicine and the inherent irony of the term

    I tried 3-4 different kinds of massage in the early years and did not find any of them helpful. If anything they left me worse off.
  6. Sean

    UK: “Stronger Together” – ME/CFS Alliance 20th Anniversary event, The Pavillion, Winchester Cathedral, 4th March 2026: 10.30-4.00

    Titles on YouTube videos often change during the first day or three, particularly on the high traffic, more commercially oriented channels. The channel owners typically try a few different titles to see which one gets the most views and go with that. Not all channels do this.
  7. Sean

    News from Austria and Switzerland

    Long-Covid patients would need daily physiotherapy and a special diet, and of course psychological support. Yes, Virginia, the world really is insane.
  8. Sean

    ME/CFS diagnosis and management among topics at free Pulse virtual event for GPs, Dr Alastair Miller, 24th March 2026

    I think he is beyond help and should be fully retired from all positions of authority and influence, effective immediately. That fact alone should render a person unfit for further involvement in our care. Or anybody else's.
  9. Sean

    Umbrella name for ME, LC, POTS, etc

    I am also in the camp that is very wary of lumping different labels together. Sure there might be substantial advantages in numbers, but as the history of all this shows there are also extreme risks, as noted by others.
  10. Sean

    Umbrella name for ME, LC, POTS, etc

    This may not be the best example. When I got sick among the first symptoms I had were changes in basic sensory input, including smell and touch. Everything just felt different, in a roughly comparable way to when you have a bad flu or a fever. Those changes were immediate, often subtle &...
  11. Sean

    A thread on what people with ME/CFS need in the way of service

    And so that in the clinical practice they understand the limits of the evidence base, which doctors in general are perhaps not so good and consistent at doing. Given what is currently regarded as 'placebo' is a mishmash of various factors, including confounding non-therapeutic factors (in...
  12. Sean

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Ironically one of the main things that saved HIV/AIDS from the psychosomatic fate was that they were indisputably dying in horrible and unusual ways. That is hard to write off to just being a psychosomatic disorder. Though a few did try, and some of those went on to die from AIDS...
  13. Sean

    A thread on what people with ME/CFS need in the way of service

    Looks good to me. Thanks to all who contributed. :thumbup: One comment, and one suggested minor rewrite: Simple advice on judging activity limits based on personal experience is all that is justified. This is the core of activity advice. Any activity. Explain to patients the basic concept of...
  14. Sean

    Dr. Binita Kane - United Kingdom

    'A very very detailed approach to pacing is super super important to recovery'. :grumpy: :grumpy: :grumpy:
  15. Sean

    Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations, 2026, Tuzzolino et al

    Looks to me like a case of OFNDS (Over Fitting Non-robust Data Syndrome, pronounced 'offends').
  16. Sean

    News from Scandinavia

    At one center (Center for Functional Disorders), 41 out of 44 patients with an ME diagnosis have been recoded as functional disorders. This is so blatantly dishonest, corrupt, and cruel.
  17. Sean

    EU Horizon funding - Prof. Simon Carding, €7.5 million

    Good to see substantial funding for biomed work. Well done. :thumbup: How productively it is spent remains to be seen.
  18. Sean

    ICD-10 Diagnoses prior to ME/CFS diagnosis in children and young people suggest potential early diagnostic indicators, 2026, Wirth

    Good evidence for misdiagnosis and psych bias. Plus possibly some kind of a prodromal phase, at least for some patients.
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