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Deliberately so. They are attempting to claim all medical conditions as their turf under the guise of their 'transdiagnostic' scam. It is nothing more than a massive brazen power grab, with no justification at all, and massive costs to patients and broader society. I curse the day that ME/CFS...

No argument. My point is simply that even when they ostensibly report a result they can't get it better than marginal, and not consistently, even if that result is legit. Legit or not, they have nothing of substance.

Or on the rare occasion when they do show a statistically significant objective result it is marginal and of little real world benefit. e.g. PACE for the 6WMT in the GET arm.

And not just hormones either, I will bet. Homeostasis is certainly a thing, but it is a dynamic equilibrium on at least many measures (e.g. blood pressure). When extended real-time collection of what are currently single point data can be done for days-months can be done then a whole new set...

You are not wrong. People need to understand and accept that BACME and their like-minded colleagues have not changed their view of ME/CFS one iota, and never will. All they have changed is their sales pitch, and only marginally, simply to adapt to the changed political realities around ME/CFS...

"There is no society-wide brain degradation occurring because of ongoing mild Covid infections..." Noted for future reference, including in legal proceedings.

I say that among the small number of golden rules in medicine is: Never lie to the patient. There are a couple of very limited exceptions: if the patient is in a psychotic or dementia state, or is a very small child. Even then the lie should be as minimal as possible. But beyond that just...

Oranges and tennis balls are both spheres, but we don't play tennis with oranges nor eat tennis balls.

Or you could just tell patients the basic idea of PEM and to listen to their body, and over time learn through direct experience how to avoid or minimise exacerbating symptoms. And admit that you got nothing more than that.

Tailored neuromodulation strategies show promise within an integrated multidisciplinary management framework And always will.

With friends like these...

What a cluster fudge. :mad:

This. The basic claim from the psychosomatic club has always been that the core – indeed defining – pathology in ME/CFS is the 'perpetuating' part of the 'Predisposing, Precipitating, Perpetuating' model, and that it is entirely psycho-behavioural, with no underlying primary biological...

The hope of the idea of a concept of a promise of a possibility of a theoretical recovery as defined in the most minimal and vague of ways.

How many attempts at proving their obsession are they going to be allowed before the rest of the world accepts they have not delivered, and are never going to? This stuff was 'promising' 40 years ago, and still is. They have made exactly zero progress in delivering meaningful benefits for...

Science is less about getting the right answer, and more about asking the right question (both theoretically and experimentally). It is even worse than that. They later re-defined recovery to mean the 'process of recovery'.

They are not failing to see it, they are refusing to see it. There is no excuse left whatsoever for these clowns. The evidence is overwhelming. They are completely wrong, and have been since day one. The fundamental problems with their 'science' and the claims based on it, and the harms...

*crickets*

Much thanks to the authors for this important and well informed statement. I can only hope some in power are listening. It is relevant to all ME/CFS patients, everywhere. This. And this. -------------- Perhaps if we all support this society, we could have a specialist medical home (Physical...

recovery programmes based on each individual's recovery goals. Toxic exploitative nonsense.