They actually have contradictory views. When patient self-report supports their interpretation it should be accepted without question, even if any objective evidence says the opposite. When it doesn't [support their interpretation] it should be ignored, or used as evidence that patient...
The number of hypotheses, and the degree and intensity of debate, about any issue are inverse indexes of how much knowledge and understanding we actually have.
In medicine specifically, I would also add the frequency that it is labelled complex and multi-factorial, best explained by a...
I agree with Andy.
ME/CFS is the best compromise from a list of bad choices, and I see little benefit, and considerable risks, in trying to get it renamed until we have a better handle on what is going on under the hood.
Similar story here. Got sick one day in late Oct 1984, struggled hard with it, not helped by the medical profession's 'offerings', my life just vanishing before my eyes in a particularly opaque and horrible way. Eventually reached crisis point as nothing was working and my options had run out...
That is probably the most significant change. Partly for support and solidarity, and partly because it has made it much harder for the authorities to pull the wool over patients' eyes and fob us off when we can directly access the medical literature and see for ourselves what the real state of...
Don't you think you should have thought of that and adequately implemented it from day one of your grand FND project?
This is what happens when you let clowns with Big Important Ideas™ play with people's lives.
This may or may not be a bad thing, depending on what the clinic was offering.
Patients need to be careful about what they wish for. If we are going to demand dedicated clinics then we need to be clear about what they can and cannot offer us.
At this stage I think they have little to offer us...
How did they measure adherence?
Indeed. They have not collected any data that reveals causation, and especially direction of any causation.
But the whole point of doing science is to determine causal relationships. If a study cannot contribute to that then it is not scientific in any...
Because that is how snake oil merchants operate. Seriously.
It is far worse than that: They don't want to ask them, and are actively working to prevent them being asked and honestly answered.
For which patients? No stratification.
No mention of a control group.
Retrospective.
Impossible to determine causation. Patients who were going to improve/recover naturally probably did so anyway.
If anything what they measured was the natural recovery rate, independent of exercise.
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