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The lack of a causal role for stress (as measured by cortisol) in the onset of ME/CFS has been known for over 20 years. From 'The HPA axis and the genesis of chronic fatigue syndrome', Cleare A (2004): In addition, there is no evidence that an abnormal initial stress response is...

Thank you, @Simon M. :thumbup:

Seems to be a disturbance in the force within the MEA. :emoji_smiling_imp: Riley's nonsense reminds of Edward Shorter's nonsense that there will never be any evidence that ME/CFS is biological.

:emoji_smile_cat:

This is very serious. It is unacceptable that research is hindered by various groups. They really don't do self-awareness, do they?

:thumbup: :hug:

https://www.s4me.info/threads/pace-trial-tsc-and-tmg-minutes-released.3150/post-57716

That was the public excuse. The excuse behind the scenes to the trial governing committee was that actimeters had failed to show a benefit, therefore there was no point in using them. Think about that. They are saying that they should not be required to use measures that might falsify their claim.

I was just noting the ones that match my experience most strongly. Not saying there aren't other areas of the body that could be affected.

Most signal is found in the shoulders, postural muscles, the neck,... Now that is interesting. It fits my experience of pain distribution. Also might help explain sleep disturbance and quality problems, via pain in those areas.

he he

...or a reduced extracellular space. Interesting. :nerd:

Why can't they just talk to patients directly? I have serious doubts that anybody who has not had ME/CFS could reproduce a decent simulation of it. Quite concerned about the risks of this, actually.

$62,237 82% 2 days left ------------ The extended time for donations meant I could squeeze one more in. :thumbup:

Or anaesthetic for medical procedures. I will take these people more seriously when they undergo major invasive surgery without it.

A further methodological concern in Seitz et al. [10] was the unexpected finding that healthy controls reported significantly higher levels of childhood trauma across all domains than the SSD group. Given established links between childhood trauma and mentalizing impairments [[54], [55], [56]]...

NICE's guideline has no bearing on the correctness of our conclusions and has been widely criticized for failing to adhere to science. No, it has been loudly misrepresented and viciously defamed by a small group of hardcore psychosomatic fans who stand to lose big time from NICE's correct...

And typically only marginally improved at that, IIRC. Similar to the 6MWT results in PACE. Statistically significant, yes. But of no meaningful practical value, and certainly not an 'effective' treatment for ME/CFS itself.

No idea if it is a common response for ME/CFS patients, but I had something like that experience [with Prednisolone]. Not a full vacation, but a very distinct and substantial improvement, that went away after I stopped taking them. However, that is also a common response to steroids in the...

However, little is known about how changes in illness perceptions in rehabilitation impact symptoms and functional levels. After decades of studies on exactly that kind of question. What magical new perspective do they think they have invented this time around?