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  1. Sean

    Multicentre validation of a patient-reported outcome measure for functional movement disorders 2026 Michaelis et al

    Still not seeing the demonstration of content validity. Just more proof of rampant confirmation bias. Same as it ever was.
  2. Sean

    Scottish ME/CFS clinical service provision

    “It’s at a level of the brain you are not in control of” - understanding this is essential for recovery. 'You have no control over it, and here is how to take control over it.' :cautious:
  3. Sean

    2025-2026 Norwegian chronic fatigue guidelines - draft published

    Ah. Thanks. Usual trick, bury it deep and misrepresent the problem and solution anyway. These arseholes really think we are foolish flakes who just need to taken by a firm guiding hand and treated like moronic wayward 5 year olds. Indeed, but worse. I regard this stuff now as straight fraud...
  4. Sean

    2025-2026 Norwegian chronic fatigue guidelines - draft published

    exercise-induced exacerbations (PEM) It is not exercise induced, it is effort induced. These are fundamentally different. The distinction matters because some want to keep the focus on physical exercise and hence the understanding limited to deconditioning type interpretations, not on the...
  5. Sean

    Instruments for measuring fatigue in people with rheumatic and musculoskeletal diseases: a systematic review of measurement properties 2025 Machado+

    I am becoming actively hostile to questionnaires, and now operate on the presumption they are of very limited and uncertain value at best, and typically worse than that. Problematic enough a tool in the hands of honest and diligent researchers with the most honourable intentions, and an open...
  6. Sean

    Instruments for measuring fatigue in people with rheumatic and musculoskeletal diseases: a systematic review of measurement properties 2025 Machado+

    "Fatigue is described as being overwhelming, distressing, extreme, not restored by sleep, multidimensional and part of a vicious circle where fatigue feeds and fosters itself.11–13" Ref 12 being Sharpe M. Cognitive behavior therapy for chronic fatigue syndrome: efficacy and implications. Am J...
  7. Sean

    Commentary: Initial Strategy for the Future of DSM [Diagnostic and Statistical Manual of Mental Disorders] 2026 Oquendo et al

    Moreover, the addition of transdiagnostic dimensions may aid in mitigating the risk of reification because it makes explicit that there are aspects of psychopathology that transcend diagnostic boundaries and hence categories. Uh-oh. :grumpy:
  8. Sean

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Because doctors are not scientists. They are high level technicians, which is a very different skill set and mindset. Doctors have to apply existing knowledge. Scientists have to generate the knowledge for the first time. Which means that doctors are not so good at determining and judging the...
  9. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Yeah, mainly onto patients, and all too often their families as well, particularly in the case of children. :mad:
  10. Sean

    New Zealand: Dr Matthew Phillips, neurologist

    Jeebus, how brazen does this shitfest have to get before it is stopped?
  11. Sean

    A Digital Platform with Activity Tracking for Energy Management Support in Long COVID: A Randomised Controlled Trial, 2025, Hayes et al

    and offers a promising framework for future research in chronic conditions where recovery is less likely.” If it didn't deliver a benefit, then what is it purpose?
  12. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Yeah, that's what we need. More inspiration and motivation. :cautious: Turns out the wellness & lifestyle movement is among the most unhealthy pieces of nonsense the human race has ever inflicted upon itself.
  13. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Bordering on guaranteeing it. Cowardice is a word that should be used more to describe what is going on.
  14. Sean

    Everything is in The Vagus Nerve: What is The Relationship Between Chronic Fatigue Syndrome (CFS) and Coronavirus?, 2020, Selma

    If ever there was a stark example of a mixed bag, it is social media. Capable of doing both great good, and great harm, sometimes on the same page.
  15. Sean

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Not that having such a history should make any difference. Mental illness does not confer immunity to physical illness.
  16. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, let's not be too generous about the motivations for working in healthcare. I worked in the health system before getting sick and that range covers the full spectrum, from the most noble to the most self-serving. That said, most I worked with were trying to do the best for patients, within...
  17. Sean

    Shingles vaccines, chickenpox, Shingrix

    @tornandfrayed How is it going? Pull up okay?
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