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  1. Sean

    “How People With Chronic Fatigue Are Gaslit by Healthcare Systems” (States of Mind)

    Yes, the gaslighting is not for our benefit.
  2. Sean

    Protocol Cognitive behavioral therapy, exercise training, and cognitive remediation for patients with [LC]: protocol of an open-label [RCT] 2025, Gouraud+

    Not only has nothing changed in the BPS school, they are becoming more resistant to change and admitting error. 'It didn't work the first 3454 times, therefore we must try it again but even harder and with more conviction this time.' :mad:
  3. Sean

    Future healthcare for ...the common pain disorder ‘fibromyalgia...’ – fundamental changes based on the discovery of an immune cause, 2025, Goebel

    Over-medicalisation and over-diagnosis are detrimental to patients. And over-psychologising isn't? The problem is inaccurate diagnosis and inappropriate treatment, whether medical or psychological.
  4. Sean

    The FHJ debate: The NHS is failing to provide services for patients with symptom-based disorders, 2025, Burton et al

    That is largely true for the whole mental health field, IMO. They are as powerful and influential as ever, yet the mental health of society is not obviously better overall than it was previously, far as I can tell, and is even arguably declining. Either they do not understand mental health...
  5. Sean

    The Born Free Protocol

    Renegade Research How appropriate. --------- Sock potato. Pfft. Just wait until you see the clear benefit demonstrated in my experiment on polar bear repelling rocks. No a single polar bear has been seen here since we started using them. The fact I live in the tropics and no polar bears...
  6. Sean

    The Born Free Protocol

    Must be some mighty powerful woo if it can reverse causality.
  7. Sean

    Exploring the autism and functional neurological disorder association: Considerations from [BPS], neuropsychological and computational model 2025 Cole

    Explain-a-matic™ Just feed in any data on health condition and it will say the answer is FND.
  8. Sean

    Efficacy of a mechanism-based psychological intervention for persistent gastrointestinal symptoms in [UC] and [IBS]:... 2025 Löwe et al

    Not even that, all we can conclude is that some patients report feeling better about it. As is tradition they have failed to collect data that enables us to distinguish between merely modifying questionnaire response behaviour and actual improvement in the underlying condition. Not going to...
  9. Sean

    A patient perspective on enduring symptoms – the unmet need, 2025, Cheston

    From the editorial: How do they know this? It might be, but the science is nowhere near being able to state it with such certainty. For very good reason. Decades on and there is still no confirmed treatment, let alone cure. Also think the use of the term 'feeling' is highly inappropriate and...
  10. Sean

    Occupational determinants of Long COVID in the population-based COVICAT cohort, 2025, Matteis et al.

    Preventative measures are all we have for now. There are certainly no treatments, let alone cures, once you have got it. So I say crank them up, big time. Encourage masks, air filters and better ventilation in buildings, social distancing (within practical reason), hand hygiene, staying at home...
  11. Sean

    A patient perspective on enduring symptoms – the unmet need, 2025, Cheston

    They actually have contradictory views. When patient self-report supports their interpretation it should be accepted without question, even if any objective evidence says the opposite. When it doesn't [support their interpretation] it should be ignored, or used as evidence that patient...
  12. Sean

    Preprint Connecting the Dots Between ME/CFS, HSD/hEDS, Abnormal Fascia, Lymphatic and Glymphatic System Impairment, and Craniocervical Instability, 2025, Lubel

    The number of hypotheses, and the degree and intensity of debate, about any issue are inverse indexes of how much knowledge and understanding we actually have. In medicine specifically, I would also add the frequency that it is labelled complex and multi-factorial, best explained by a...
  13. Sean

    BOLD signal changes can oppose oxygen metabolism across the human cortex, 2025, Epp et al.

    According to the findings, there is no generally valid coupling between the oxygen content measured by MRI and neuronal activity. Interesting. :nerd:
  14. Sean

    Opinion: Why I support the use of ME/CFS as opposed to any other name

    I agree with Andy. ME/CFS is the best compromise from a list of bad choices, and I see little benefit, and considerable risks, in trying to get it renamed until we have a better handle on what is going on under the hood.
  15. Sean

    Works of fiction where characters have ME/CFS

    Liked, but didn't reveal the spoilers as have not seen the film yet.
  16. Sean

    News from Canada

    Be interesting to see a more granular breakdown of the 45-64 age group, maybe into 5 year intervals, to see if the rate goes up with age.
  17. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Similar story here. Got sick one day in late Oct 1984, struggled hard with it, not helped by the medical profession's 'offerings', my life just vanishing before my eyes in a particularly opaque and horrible way. Eventually reached crisis point as nothing was working and my options had run out...
  18. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    That is probably the most significant change. Partly for support and solidarity, and partly because it has made it much harder for the authorities to pull the wool over patients' eyes and fob us off when we can directly access the medical literature and see for ourselves what the real state of...
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