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  1. Sean
    Post

    Trial Report Explanation for symptoms and biographical repair in a clinic for persistent physical symptoms, 2024, Burton

    patients felt they had to work hard at being credibly ill in the eyes of others so as to avoid stigmatisation, or the spoiling of their identity...
    Post by: Sean, Apr 24, 2024 at 7:28 AM in forum: Other psychosomatic news and research
  2. Sean
    Post

    Well-known, famous people with Covid-19 and Long Covid

    Did they pay out her disability/income insurance policy, or make her fight for it? :p
    Post by: Sean, Apr 24, 2024 at 7:02 AM in forum: Long Covid news
  3. Sean
    Post

    Severe difficulties with eating in ME/CFS

    Hundreds of others go without access to basic medical care or screening services because they are too unwell to travel and there are no at-home...
    Post by: Sean, Apr 24, 2024 at 6:54 AM in forum: ME/CFS research
  4. Sean
    Post

    Australia: RACGP: GET for CFS

    Yes, nice catch. :thumbsup: Difficult for them to be more brazen in their denial and utter contempt for us, science, and basic ethics....
    Post by: Sean, Apr 24, 2024 at 6:49 AM in forum: Other guidelines
  5. Sean
    Post

    USA Long Covid Action Project

    If patients don't have a right to demand the ceasing of shitty damaging research and its imposition on our lives, who the eff does?
    Post by: Sean, Apr 23, 2024 at 10:35 AM in forum: News from organisations
  6. Sean
    Post

    Preprint A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People, 2024, Connor et al

    Medical abuse at its worst. The forced imposition of the most disturbing and cruel double-binds on patients and their families. This is...
    Post by: Sean, Apr 23, 2024 at 10:33 AM in forum: Long Covid research
  7. Sean
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    Agreed.
    Post by: Sean, Apr 23, 2024 at 9:41 AM in forum: General Advocacy Discussions
  8. Sean
    Post

    Australia: RACGP: GET for CFS

    Citing that as the only reference for consumer resources / patient information is so dishonest and low. Not citing NICE is pretty revealing and...
    Post by: Sean, Apr 23, 2024 at 9:40 AM in forum: Other guidelines
  9. Sean
    Post

    Australia: RACGP: GET for CFS

    Citing PACE in support of GET says everything you need to know about how shitty the situation is here with the medical establishment. The...
    Post by: Sean, Apr 23, 2024 at 9:34 AM in forum: Other guidelines
  10. Sean
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I don't think it is a great mystery. They stand to lose hugely if the truth about this farce is ever accepted by broader society, especially the...
    Post by: Sean, Apr 23, 2024 at 9:26 AM in forum: General ME/CFS discussion
  11. Sean
    Post

    New Zealand: Dr Vallings

    sigh :banghead:
    Post by: Sean, Apr 23, 2024 at 9:02 AM in forum: Other clinics and doctors
  12. Sean
    Post

    Australia: RACGP: GET for CFS

    If anybody has wondered over the years why I am not active on the Australian scene, this is exactly why. We do have some good researchers trying...
    Post by: Sean, Apr 23, 2024 at 9:00 AM in forum: Other guidelines
  13. Sean
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    The 2002 Australian Guidelines had their fair share of the usual problems, and are now way out of date. But one thing they did get right was this...
    Post by: Sean, Apr 23, 2024 at 8:48 AM in forum: News from organisations
  14. Sean
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    You are doing fine. :hug:
    Post by: Sean, Apr 23, 2024 at 8:32 AM in forum: Recruitment into current ME/CFS research studies
  15. Sean
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Depends on who is writing the protocol. This. We are still having to play the get stuff on the (relevant) formal public record so nobody can...
    Post by: Sean, Apr 23, 2024 at 8:28 AM in forum: General ME/CFS news
  16. Sean
    Post

    Debugging the Doctor Brain: Who's teaching doctors how to think?

    he he
    Post by: Sean, Apr 23, 2024 at 8:17 AM in forum: General clinical care
  17. Sean
    Post

    News from the USA, United States of America

    How about removing Walitt from the project, for starters?
    Post by: Sean, Apr 22, 2024 at 5:28 AM in forum: Regional news
  18. Sean
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Rehabilitation, including CBT and GET, for CFS/ME assumes that disability and symptoms, once established, are at least in part maintained by...
    Post by: Sean, Apr 22, 2024 at 5:24 AM in forum: ME/CFS research news
  19. Sean
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I have long thought that ME/CFS was their doorway to applying GET/CBT type 'rehab' across the board. And so it has proved to be. It is one of the...
    Post by: Sean, Apr 22, 2024 at 5:06 AM in forum: ME/CFS research news
  20. Sean
    Post

    Debugging the Doctor Brain: Who's teaching doctors how to think?

    A few lifetimes back I dabbled in writing processor code in hex. Frequent printouts of the code was a big help in tracking what was going on. So...
    Post by: Sean, Apr 22, 2024 at 5:01 AM in forum: General clinical care
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