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  1. Sean

    Needing to lie flat

    I started going to sleep on my left side many years ago after talking to my GP about treating serious acid reflux, and he pointed out that the entrance to the stomach does not sit in the middle top of the stomach but to one side (the right). So if you have the entrance facing upwards, by...
  2. Sean

    Review The association between subjective and objective cognitive functioning from a transdiagnostic perspective: An umbrella review... 2025 Van Patten et al

    Researchers and clinicians should not expect to find concordance between concurrent self-reported cognition and neuropsychological testing, and simple discrepancies between subjective and objective cognition are so common as to be diagnostically unhelpful. As some have been trying point out for...
  3. Sean

    Narrative means to normative ends: story-centred practice in statutory contexts, 2025, Foell & Launer (has mention of ME/CFS)

    It has been clear for some time that this is exactly what they are trying to do – become the gatekeepers. If that doesn't terrify people, then they have not understood the problem.
  4. Sean

    General thread on functional disorders in Denmark

    He is in deep denial that his life's work is in fact a complete bust that has done, and continues to do, terrible harm. Too bad. He and his ideas are seriously wrong, always have been, and need to be immediately removed from any influence over this disease. This guideline has been subjected to...
  5. Sean

    Why the BPS people think the way they do

    The psychologisation of everything continues on without restraint.
  6. Sean

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    Not allowed to donate blood here in Australia. Which I agree with as a reasonable precautionary measure.
  7. Sean

    Heathrow incident 8/9/25 claimed to be mass psychogenic illness

    It would be unfair on pre-history humans, who needed a very robust grasp of reality to even just survive, let alone prosper. We here in Australia had a Prime Minister a few years back (Tony Abbott) who literally ate a raw onion at some event like it was an apple, unprompted and apparently...
  8. Sean

    News from Scandinavia

    Good article. :) Exactly. None of this is for our benefit. Never has been.
  9. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    What they said. Very important point, that needs to be taken into full account in any research hypothesis, clinical model, and medico-legal assessment. Might also be something we can make much more use of for advocacy.
  10. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    We see the same thing with long covid, where several solid studies show that cognitive behavioral therapy can significantly reduce symptoms [12-14], even though we do not have a full overview of the biological mechanisms. ???
  11. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Thanks for that @Trish. and micromanaging our lives in totally unrealistic ways, Unrealistic, unhelpful, intrusive, insulting, and demeaning. And very disturbing. All so they can have careers, feel special, and avoid having to admit they got nothing.
  12. Sean

    Heathrow incident 8/9/25 claimed to be mass psychogenic illness

    Not to mention their recklessness. As to Wessely being a little more cautious, it has only taken him nigh on 40 years. Which is, you know, waaaaaay too late.
  13. Sean

    You Might Have Already Fallen for MAHA’s Conspiracy Theories

    When the lust for gold and power speak louder than reality, this is what we get.
  14. Sean

    Criticisms of DecodeME in the media - and responses to the criticisms

    That is exactly what they are doing, and have been for some time. The rest of medicine, and the broader governance structure, need to wake the hell up to it and stop them.
  15. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    A core problem in subjective assessment that was known and understood decades ago, indeed millennia ago. Yet here we are, with the very profession who is supposed to be responsible for understanding this methodological issue and making sure it is taken into account in research and clinical...
  16. Sean

    Criticisms of DecodeME in the media - and responses to the criticisms

    We also know that recovery is possible, They know no such thing. They merely assert it. Yup. That is exactly what they will do, indeed are already doing via FND, rather successfully thus far unfortunately. And they will keep right on trying to foist this garbage onto sick vulnerable innocent...
  17. Sean

    News from the USA, United States of America

    Good result. But the 'restored' pages will need some close scrutiny to make sure they have not been altered.
  18. Sean

    Is ME/CFS a form of Host versus Host disease?

    I get tender, firm, and somewhat swollen glands, almost entirely the neck ones. Has always been a feature for me.
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