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Glad this thread was started. There is alot to say about Dr A and the problems he is/has caused here in BC. He works out of St Pauls, the complex chronic disease program for people with ME and privately. I'm crashed but hope to gather up info and place it on this thread later. He is the one who...

Compression and coffee was a game changer for me. They took me from not being able to be upright for more than 5 min to being able to putter around all day with rests. I tried a cheap pair of drugstore tights at first. Gave my legs energy and cleared much of the brain fog but made my arms feel...

I wouldn't consider this unreasonable and actually still quite polite. Does it add to the debate? Not much but it does show a person stating what they think of his blog....agree or not. They are entitled to their opinion. I don't think its damaging in anyway the the ME community. People can say...

I'm blocked from both my personal and art page. I've never commented nor do I follow her. My personal page I've barely used the last few years and my art page is for showing mine and others art, not ME advocacy.....How bizarre.

I've actually been quite sick this last few years and experiencing alot of pain in epididymis to which no answer has been found as to why. In addition, sinus pain, tinnitus, thirst and need way too much water, teeth seem to be dissolving, etc. All different from my normal ME symptoms. At its...

Air hunger for me is this feeling like I just don't get a full breath. Chest feels a little heavy. Not wheezing or gasping or out of breath just more like my lungs only open 75%. I do have more brain fog and a heavy feeling in head and body when it happens. I find quercetin relieves the symptom...

When I first became ill one of my most troubling symptoms was a sensation of extreme ‘anxiety’ even though nothing had changed in my life nor had reason to be anxious. In an effort to makes sense of this it was like my brain looked for things in my life to explain it. Maybe work stressed me and...

My first 2 GP's were useless and ended up going about 4 years without one altogether at one point. The one I have now is new and doesn't seem to do much either. I literally emailed him every 2 weeks for 3 months now telling him its not better and needs investigation. I've had my sister call to...

Yes its kind of a weird one. I had an ear plug temporarily a few days ago and about 30 seconds of ringing after. That was easy to tell it was in the ear and seemed like tinnitus. I still had the ringing in head as the ear was ringing.

One thing to keep in mind is the mechanism of action. Ranitidine is an H2 (histamine) blocker where as lansoprazole is a PPI (proton pump inhibitor). I get alot of benefit from blocking histamine due to food intolerance but reducing acid production is counter productive in my case.

Yes, I doesn't feel much like an ME thing to me.. I'm working on my GP but it seems to take multiple attempts to get him to investigate a new symptom and not write it off as ME unfortunately.

Mine started 3 months ago and goes steady day and night. Never had it before ME or the 8 years sick. I don't understand it though as everyone describes it as in one ear or both but to me it feels like its in the center of my head. I also have a terrible headache, pressure in my head and like...

I don't have evidence but I have an art page on both twitter and facebook and can say the use of hashtags on twitter can be quite powerful in reaching new audiences. People use hashtags to search for what interests them. Facebook unless one works the post and/or shares posts to groups it...

I'm not sure why or exactly what it does but it will worsen my OI after the initial stimulating effect wears off. It does raise the heart rate at first. I don't have a BP monitor so can't say for sure what it does to BP but I do have already low BP and it does make that feeling worse. Hard to...

When I first became sick my GP, who also had a psychology degree, figured everything was anxiety. He was an idiot. When I asked for second opinion, he would only refer me his friend the psychiatrist in Vancouver and only if I promised to take any med he offered no questions asked. He also told...

As far as I can tell from the people I've heard from in the CCDP or those recently discharged CSS is still promoted and ME is part of it despite Yunus's 2015 paper stating there is no evidence to include it. When I went through 3-4 years ago I was given Yunus's 2007 paper as part of my...

The problem in the Canadian medical system is often a Fibro Dx means they don't want to look further or deal with you anymore. Many doctors still don't accept ME and give a fibro Dx in its place. An ME Dx also means they don't want to look further or deal with you anymore. Being a public system...

Pretty brain fogged at the moment but remember my grandma telling me when she was young on the farm they would heat bricks or stones on the wood stove, wrap them in clothes or fabric and take them to bed with them. Solar greenhouses used in winter are designed using the same principle where one...

Do you know how long the wait is these days?

I got neurasthenia as my first Dx from my GP in 2011 when I got sick. Even wrote in on my insurance forms. It took a psychiatrist to tell him he was wrong and cleared me of all mental disorders for that matter and told my GP I needed biological investigation. My GP stopped treating me and...