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  1. eva

    Hospitalized Patient w/ Severe ME Looking For Treatment Guidelines

    Hope that you will be home soon @Paradoxfloss and that your home care will improve a lot too when you get home. I have a booklet that has information for patients and hospital staff regarding treatment of patients with ME. I keep it on hand just in case I ever need it. It's fairly comprehensive...
  2. eva

    Jennie Spotila: Crisis and Suicide

    Here are some contacts for UK Members: - Samaritans: https://www.samaritans.org/how-we-can-help-you/contact-us/what-speak-us-about Helpline: 116 123 (free of charge from a landline or mobile) From the Samaritans website: “There is no typical reason why someone might call us, just as there’s no...
  3. eva

    Useful gadgets that make life easier for MEcfs patients and carers

    One of my favourite things is my Fisher Space Pen. It's based on technology that was developed for astronauts and it's great for writing in bed or lying on the sofa when I can't sit up at all, as it can write at any angle with no effort. Mines about 25 years old now and still going strong. The...
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