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I'm a subscriber but it's paywalled so I'll share the rough gist of the NS article: 25 patients compared to 15 controls. Blood samples analysed for 'seven parameters of abnormal blood clotting, such as clot size and clotting rate'. 20/25 patients had at least one abnormality, 4 had five...

Was just coming to post this, you beat me to it :) Paper here: https://www.mdpi.com/1424-8247/15/8/931

Popping up after a long-time absence to share this pretty good editorial from New Scientist: Long covid – the best thing that ever happened to functional disorders https://www.newscientist.com/article/mg25333753-800-long-covid-the-best-thing-that-ever-happened-to-functional-disorders TOO many...

Got my copy of Private Eye through the post and it's... not bad? Or at least progress.

I don't disagree with the attribution point (hence my caveat about fairness), and certainly don't mean to imply any level of collective guilt. My view was more that I think 'any harassment is wrong, is down to a handful of people rather than all patients and, regardless of its existence, has no...

Now I'm back home and my PEM has subsided I thought I would expand on this point a bit more and give some more context/examples. My post above was and remains on the Tom Chivers article thread but I think this probably belongs more in this one. As I said in my original post, I am hesitant to...

I’ll try and expand on my original post in due course as a short walk yesterday means I feel like I’m being trepanned today. However, to be clear, my point wasn’t that the bulk of patients are actually regularly abusive. More that some features of this community can be counterproductive (/not PR...

It’s an excellent article and I’m pleased he’s not got sidetracked on the ‘physical/psychiatric’ debate but made clear the evidence doesn’t support these treatments regardless of the aetiology. On the harassment point, I think he’s fair to raise it in the way he does - we have to face it that...

Because it’s pretty clear they found no difference with the placebo group. Both groups showed some improvement almost certainly due to the placebo effect. Of course, a placebo controlled trial only works if you don’t treat the placebo effect-induced improvement as demonstrating efficacy in the...

The fascinating part will be once the paper is released and whether we see the autoantibodies that the Imperial team claim to have detected match those seen the Scheibenbogen team in ME/CFS. (And, until we see a paper, we shouldn't get too excited: I want to see the sample size, statistical...

This field is crying out for replication studies and (to my untrained, somewhat uninformed try) this is yet another study finding similar mitochondrial issues. Anyone got a good overview of these studies / seen a good review paper? Would be good to compare results / where in the ATP production...

Feature article is here: https://www.newscientist.com/article/mg25033403-600-long-covid-do-i-have-it-how-long-will-it-last-and-can-we-treat-it/

Very good leader in this week's New Scientist, which has Long Covid as a cover story. Behind a paywall so only posting excerpts:

Discussed further here: https://www.healthrising.org/blog/2017/04/18/stanford-paradox-elevated-energy-production-found-chronic-fatigue-syndrome-mecfs/ IIRC (I haven't gone back and read the article), the tests were done in an absence of patient serum. Given some tentative (but replicated)...

I believe Montoya et al also found correlation between IP-10 (aka CXCL10) and ME/CFS severity: https://pubmed.ncbi.nlm.nih.gov/28760971/

The weird thing is that many people (especially doctors) who have had lengthy but temporary post-viral fatigue are unable to explain the mechanism of what caused it when they had it, yet happily view those whose post-viral condition didn't resolve as having a psychological disorder. Few see the...

Yep, I said something similar a while back: I think a related point is similar to the old 'Reddit hug of death': if you tweet about having long-term COVID symptoms and you receive a huge number of similar messages about it being ME/CFS then, even if well-meaning, the sheer volume of messages...

Hopefully not too off-topic, but is there a good understanding of what causes short-term post-viral fatigue? Seems that a lot of post-COVID patients are not experiencing the full ME/CFS disbelief from doctors yet. If I were to caricature what some patients have reported, if one presents with...

https://www.newscientist.com/article/mg24632881-400-why-strange-and-debilitating-coronavirus-symptoms-can-last-for-months/ Not a great piece, bit disappointing from New Scientist. Quotes from Paul Garner's earliest BMJ article: Might send them an email pointing out that most CFS cases have...

Desktop, Windows 10, Firefox 77.0.1. Do you receive a confirmatory email after registering? I haven't received one but don't know if that's a sign I didn't register properly or whether no such emails are sent.