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    Phase III Rituximab Trial - News

    Some are doing very well out of crypto........
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    Discussion of patient self reported adverse effects of Rituximab

    Interesting that at the current Invest In ME conference, Professor Maureen Hanson emphasised the heterogeneity within groups.
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    Anyone get rheumatic/arthritic type joint pain?

    I don’t get the muscle pain that typifies ME, but more joint pain. Rheumatoid arthritis has been ruled out in my fingers & wrists, after having MRIs which show nothing. I also get rheumatic pain to a lesser extent in my feet.
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    Australian news article: “What causes chronic fatigue? What we know, don’t know and suspect”

    Finally an academic mainstream article pushing the need for biomedical research (FYI, The Conversation is the most widely viewed media site in Australia & inevitably will be worldwide) https://theconversation.com/what-causes-chronic-fatigue-what-we-know-dont-know-and-suspect-94395
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    Discussion of patient self reported adverse effects of Rituximab

    Didn’t Mella even state that he thinks there is a subset that it works on? I tend to agree with the stratification issue - ‘MECFS’ is ridiculously broad Anyway, we will get more of an idea when the data is released & the individual case responses can be examined against the equivalent placebo...
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    Infection Elicited Autoimmunity and ME/CFS (2018) Blomberg et al

    Interesting that they mention dysbiosis in the Abstract. There was no infection that elicited my condition, but I showed dysbiosis & substance intolerances on several tests.
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    Discussion of patient self reported adverse effects of Rituximab

    Dr John Whiting from Brisbane Australia, has just tweeeted: “A patient of mine is doing well on rituximab. This drug is not dead......even if the data shows a null effect in a randomised trial, then I’m guessing that the cases were ineffectively stratified, given that subgroups are evident in...
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    Sleep test - Brain wave patterns

    Also forgot to add that I also saw an Ear/Nose/Throat Physician who stuck a ‘snake’ camera up my nose & down my throat & stated unequivocally that my nasal passage was clear & there was not enough ‘lumpiness’ at the back of my tongue to be causing OSA. He bluntly started that any OSA was not the...
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    Sleep test - Brain wave patterns

    I will have to investigate this further. A separate test I undertook at home resulted in between 6 & 7 events per hour & this was also considered normal - again I was told I did not have OSA. I was advised by the first sleep physician, that the cutoff in Australia is 10 events for diagnosis.
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    Sleep test - Brain wave patterns

    Are you able to link to independent standards regarding your statements? I have been advised that 5-6 apnea events per hour are considered normal (meaty part of bell curve of a normally distributed population, untreated)
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    Sleep test - Brain wave patterns

    There is no 'opinion' in reading a plot graph. Only fraud. Unless I am setting the intellectual bar too high.....
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    Sleep test - Brain wave patterns

    The second sleep specialist effectively laughed at the initial sleep specialist’s diagnosis. She borded on condescending toward him, but it was her professionalism that moderated it. You are diagnosed with obstructive sleep apnea when you have 10 apnea events per hour. I had 10.2 ‘events’...
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    Sleep test - Brain wave patterns

    I am not saying sleep apnea is a scam, I am saying the industry is a scam. People, like me, are being misdiagnosed to generate income. You cannot mistakenly misdiagnose obstructive sleep apnea. All you have to do is read a simple, simple graph.
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    Sleep test - Brain wave patterns

    Thank you - it supports my argument of a medical industry scam
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    Sleep test - Brain wave patterns

    A second sleep specialist looked at my test results & said I should have never been diagnosed with it - she said it was what you would expect from a large percentage of the normal population. She even went further & said that the specific specialist, who she knew very well, tends to blame...
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    Sleep test - Brain wave patterns

    It is a scam if you are diagnosed with it when you don't have it
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    Pain Relief w/o Narcotics

    :laugh::laugh::laugh: Reminds me of The Big Bang Theory episode when they go camping!
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    Significance of unrefreshing sleep in IOM diagnostic guidelines

    It’s a very interesting area - diagnostic criteria. I don’t get PEM (at least I don’t think I do), but I feel absolutely terrible after sleeping. Sometimes wake up feeling nauseated & with a headache.
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