I don’t get the muscle pain that typifies ME, but more joint pain.
Rheumatoid arthritis has been ruled out in my fingers & wrists, after having MRIs which show nothing. I also get rheumatic pain to a lesser extent in my feet.
Finally an academic mainstream article pushing the need for biomedical research
(FYI, The Conversation is the most widely viewed media site in Australia & inevitably will be worldwide)
https://theconversation.com/what-causes-chronic-fatigue-what-we-know-dont-know-and-suspect-94395
Didn’t Mella even state that he thinks there is a subset that it works on?
I tend to agree with the stratification issue - ‘MECFS’ is ridiculously broad
Anyway, we will get more of an idea when the data is released & the individual case responses can be examined against the equivalent placebo...
Interesting that they mention dysbiosis in the Abstract.
There was no infection that elicited my condition, but I showed dysbiosis & substance intolerances on several tests.
Dr John Whiting from Brisbane Australia, has just tweeeted:
“A patient of mine is doing well on rituximab. This drug is not dead......even if the data shows a null effect in a randomised trial, then I’m guessing that the cases were ineffectively stratified, given that subgroups are evident in...
Also forgot to add that I also saw an Ear/Nose/Throat Physician who stuck a ‘snake’ camera up my nose & down my throat & stated unequivocally that my nasal passage was clear & there was not enough ‘lumpiness’ at the back of my tongue to be causing OSA. He bluntly started that any OSA was not the...
I will have to investigate this further.
A separate test I undertook at home resulted in between 6 & 7 events per hour & this was also considered normal - again I was told I did not have OSA.
I was advised by the first sleep physician, that the cutoff in Australia is 10 events for diagnosis.
Are you able to link to independent standards regarding your statements?
I have been advised that 5-6 apnea events per hour are considered normal (meaty part of bell curve of a normally distributed population, untreated)
The second sleep specialist effectively laughed at the initial sleep specialist’s diagnosis. She borded on condescending toward him, but it was her professionalism that moderated it.
You are diagnosed with obstructive sleep apnea when you have 10 apnea events per hour. I had 10.2 ‘events’...
I am not saying sleep apnea is a scam, I am saying the industry is a scam.
People, like me, are being misdiagnosed to generate income.
You cannot mistakenly misdiagnose obstructive sleep apnea. All you have to do is read a simple, simple graph.
A second sleep specialist looked at my test results & said I should have never been diagnosed with it - she said it was what you would expect from a large percentage of the normal population.
She even went further & said that the specific specialist, who she knew very well, tends to blame...
It’s a very interesting area - diagnostic criteria.
I don’t get PEM (at least I don’t think I do), but I feel absolutely terrible after sleeping. Sometimes wake up feeling nauseated & with a headache.
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