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Sounds quite decent if not yet absolutely perfect. I'm so glad for our long-suffering Swedish comrades.

Actually, I just the other day read a quite reasonable report explaining bio-chemical phenomena that could lead to PENE. Or PEM, as some named it contrary to English language meaning of "malaise" Unfortunately I am incapable of remembering anything for long, let alone a series of bio-chemical...

You mean like how the exposure of how the PACE report was fiddled in UK court just ruined the BPS psychiatrists? How Dave Tuller's exposés of Esther Crawley's fake science and child exploitation against UK law and Journal regulations has completely destroyed these people and their careers? Oh...

The blackening, as said in another reply, is due to the very successful and part-government funded pr especially by US psychs but also by CDC and NIH basically to serve those who have successful careers based on destroying lives of ME patients. That the UK charities refuse to fight back in any...

Do the complaints refer to 30 years ago?

There are biological tests that can be used together to make diagnosis as many docs not in trouble have done. You have been lied to by government about "aren't any tests for me." What there isn't is the $500 million in government money needed to run these tests through enough accreditation for...

I would like to see all of these charges (I mean accusations) explained by someone knowledgeable about Canadian medicine and practice. The Ontario statement is just Greek to me. Would like to see for each part what the proper Canadian physician is meant to do. I don't understand at all the...

Neil, where do you get that idea about "once the initial illness has passed?" Maybe your "initial illness" has passed, but my pathogens like me so much some of them have stuck around for 30 years. Although I'd rather have that darling Cavalier King Charles Spaniel for company. Please send. If...

Reading the 2005 online Bay Area paper, I noticed (about 3/4 down the article) Suzanne Vernon claiming elaborate research in process for ME/"cfs" at CDC back then. What happened to it? Anyone know? Was it ever begun? Here is the article link; "find" Vernon's name to get to the segment. Thanks...

Scientists, journalists and basically all professionals outside the clergy should not be allowed to "believe" anything in relation to their professions. Hypothesize, research, trial (not by unblinded uncontrolled self-report) and subject to review. Amen.

Whoops. I meant to make it former and possibly still head. Good catch Trish.

Not coincidence. AFME and Ms. Chowdury featured in literature.

Years ago trial proved med personnel took ME seriously but CFS much less so. That was a real published peer-reviewed trial.

Action for ME and Sonya Chowdury, former AFME head, would seem to be principals, judging from the correspondence. Perhaps someone in UK can do a bit of due diligence. What is BACME? One reason to be in Switzerland is the UN agencies like WHO. A better one is to use funds on deposit in a Swiss...

Jonathan Edwards, I had a report of a patient attending the Royal Free cfs/ME clinic, being assigned CBT, doing it with no benefit and being then informed by RF that that was it; she'd had her one treatment. And I'm sure you are aware that testing for pathogens or immune abnormalities is beyond...

on As a one-time Londoner I am appropriately cynical: NICE will come up with a close replica of what it now has and does. The key will be to keep the King Weasel on his throne and all the vassals profitably employed in pretending to administer wellness while happily populating the groves of...

The real bummer for ME research is how much time and energy (which equal money) are needed for each grant application. When you consider the nasty and cavalier way in which ME researchers have been systematically persecuted over the past 30 years (even before the overall grant application...

May we know the bibliographical reference for the 1991 paper please?