Additional resource ideas Why Chronic Fatigue. (Full stop) can be problematic- a lot of mild ME patients do use this as a coping mechanism. A...
Just wanted to show appreciation to the #ThereForME team for the excellent advent calendar idea. Really encouraging to see so many allies have...
Judging by my husband’s response, this video is right on target @Adam pwme (a few choice word's plus a “I don’t know how you cope” owtte) I...
Thank you Adam. Brilliant.
I posted in 2022 about Liverpool Broadgreen MECfS service. Met my GP today and he has had a number of new ME patients and he has been informed by...
Binita’s explanation I find useful as an interim, easy to use description for my family so I’ve sent them the clip. She speaks in a language they...
That was an outstanding interview by Sarah and Binita on BBC breakfast Tagging @Adam pwme
Re: Dr David Strain It was reiterated many times that he is not a “CFS” expert but a Physician with an interest in “CFS”. Why then is he...
Final brief impressions: Sarah and Sean raised good points. A Regulation 28 report will be drafted and directed to DHSC, NHS England and NICE....
A very brief overall impression up to the break Dr A Helmsley (AH): He is very clear that nowhere in NHS or privately in England are there any...
Listening online now. 132 guests. Sean issued a late statement that had not been circulated. Pause in proceedings whilst everyone receives a...
@Karen Hargrave Welcome and thank you for #ThereForME. I am hopeful that this will make a difference. The media work has been excellent. Wishing...
[MEDIA] Pasted tweet from Oonagh Cousins here: Due to the influx of support from healthcare professionals after the #ThereForME open letter was...
Diagnosis and management of OI in MECFS. (2022) Video description: Cardiologists Professor Frans Visser and Dr Linda van Campen explain all about...
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421 Just placing the 2015 article here (has the often used chart comparing...
@Adam pwme aka Broken Battery doing great work putting threads together speedily with free links to articles and YouTube clips of radio...
https://www.efna.net/survey2024/ A new survey: The Invisible Issues of Neurological Conditions Ends 30/8/24 Easy survey and very relevant to ME.
Yesterday Action for ME gave a reply on XTwitter regarding a query about the APPG “We have already sent briefings to parliamentary candidates &...
[MEDIA] Direct link to same page https://www.europeanmealliance.org/emea-who-message-imecw2024.shtml
25% believe they are complying
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