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One of the things that surprised me was the percentage that said they had IBS being as low as it was. I was personally actually ok about that separations at this time @Trish because more in-depth work on the cohort can happen with questionnaires. They can look further into the things your...

Woah. I have waited so long to see work like this and it's starting. I actually cried I was so relieved to see this pre-print paper and genuinely surprised by some of the findings. Well written and important. The beginnings of fundamental work that is so badly needed. Thank you DecodeME team...

Oliver Fiehn's work.

I won't donate because it is very unclear what he is researching specifically therefore I have no idea what impact if any it would have. If he wants to advocate as he has been thats great but I am not funding single person paid advocates.

I agree with this and think all ME/CFS needs a proper standardised measurement for severity that includes symptoms and disruption of activities of daily living.

Thanks @Andy

NO fatigue...:bored:

I am pretty sure he was inspired by another scientist that did a very long expensive study on himself in the States. With limited funding this was a very smart study in my opinion. I hope he does another one with Male subjects due to sex differences. It is good to see in-depth longitudinal work.

I agree with @Andy on everything including the above but I would like to add that as @TiredSam says twitter is a cesspool and a place for many to vent at times. I have vented on there myself to be honest. Not sure if at times it has been constructive when I have. I am sure that Andy did not mean...

Thank you @Simon M !!

The Microbe Discovery Project FB just posted this: "CII need more applications for their ME/CFS Community Advisory Committee. Experience in epidemiology is a particularly important area of need. Please share widely and reach out to folks you know that have this experience. Open to people...

Sigh

This is great news @Simon M A big thankyou to you and especially Chris! I think this could be be game changer in the UK. Prof Ponting is quite specialised in this area of work isn’t he?

Is it possible the CMRC can form a collaborative research hub or center a bit like the ones just funded by the NIH?

Is it possible to make the CMRC produce a larger conference in the UK through gaining funding considering they have no funds? With the idea of helping to build more interest and a stronger base.

What does the CMRC need to do to create a stronger biomedical base and bring in more researchers who are specialists in their own fields?

What is Chris's vison for the CMRC going forward and how can this be acheived?

Was nice to see the quotes from Chris Ponting too and other helpful links.

Thanks for this. Some more simplified clarity around PACE version CBT and GET which is very different from standard CBT and appropriate GET for ME which is more like pacing, could help confusion as it's also quite a long read. David Tuller had explained this more simply and well many times. His...

Maybe NCNED? The only researchers in Aus flushed with cash... Would seem a bit unfair for other biomed researchers keen to get funding for work who can already access cohorts. It is possible to access the UK biobank already anyway I think. Its set up and well characterised and NIH supported.