1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 13
  1. dangermouse
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Hello, I have received another spit kit, though I sent mine back many months ago. I didn’t receive an email to say that it was received but...
    Post by: dangermouse, Dec 24, 2023 in forum: Recruitment into current ME/CFS research studies
  2. dangermouse
    Post

    Gary Burgess - The ME show, and updates about Gary's health.

    Dear Gary, so very very sorry to hear you’re news. I will not forget all that you have done for our community, one of our hero’s. Kindest, best...
    Post by: dangermouse, Oct 22, 2021 in forum: General ME/CFS news
  3. dangermouse
    Post

    United Kingdom: ME Association news

    This is very concerning. From what I’m seeing here and some awful testimonies what is MEA thinking?
    Post by: dangermouse, Oct 7, 2021 in forum: News from organisations
  4. dangermouse
    Post

    Anybody had any improvement of pain symptoms from HRT?

    Hi @Maria1 - thanks, I'm exhausted by it all but relieved to be home. I'm so sorry to hear that you get migraines too, they are really...
    Post by: dangermouse, Sep 24, 2021 in forum: Pain and Inflammation
  5. dangermouse
    Post

    Anybody had any improvement of pain symptoms from HRT?

    Just to update: I presented with TIA symptoms at hospital (sent to a special unit that bypasses a&e thanks to my GP! I had told him I couldn’t...
    Post by: dangermouse, Sep 23, 2021 in forum: Pain and Inflammation
  6. dangermouse
    Post

    Anybody had any improvement of pain symptoms from HRT?

    Hi @Maria1 I started a trial of HRT three months ago and I have not experienced any improvement of pain. In fact I’ve had horrendous increases...
    Post by: dangermouse, Sep 23, 2021 in forum: Pain and Inflammation
  7. dangermouse
    Post

    Video: Phil Murrays ME/CFS full recovery story & call for more research funding

    That link is very helpful thank you @lunarainbows
    Post by: dangermouse, Sep 17, 2021 in forum: General ME/CFS news
  8. dangermouse
    Post

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    I am not well enough to be around the forum consistently and would like to thank you all very very much for this and everything that you do for...
    Post by: dangermouse, Aug 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  9. dangermouse
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Huge thanks to all who have contributed and advocated for pwme. I’m not well so can’t be around much but I do appreciate everything you’ve all...
    Post by: dangermouse, Nov 9, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  10. dangermouse
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Similar thing happened to me. A CFS clinic called it pacing but encouraged baseline to do no matter how ill I felt, then increase by ten percent...
    Post by: dangermouse, Nov 9, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  11. dangermouse
    Post

    Gary Burgess - The ME show, and updates about Gary's health.

    Very sad news.
    Post by: dangermouse, Nov 6, 2020 in forum: General ME/CFS news
  12. dangermouse
    Post

    DecodeME - UK ME/CFS DNA study underway

    Thanks. I just want to make sure I did it right and that any emails don’t go into spam etc. Some of my family members have registered to be part...
    Post by: dangermouse, Jun 27, 2020 in forum: ME/CFS research news
  13. dangermouse
    Post

    DecodeME - UK ME/CFS DNA study underway

    I’ve registered, do you get a confirmation email? Just wondering.
    Post by: dangermouse, Jun 27, 2020 in forum: ME/CFS research news
  14. dangermouse
    Post

    DecodeME - UK ME/CFS DNA study underway

    Brilliant news. I’ve signed up. Thanks to everyone who made this happen.
    Post by: dangermouse, Jun 23, 2020 in forum: ME/CFS research news
  15. dangermouse
    Post

    Using our experience to help deal with isolation

    I saw a thread on Twitter (but forget completely who it was by) that was a pwME who was sharing tips for living in isolation, it was really...
    Post by: dangermouse, Mar 17, 2020 in forum: Advocacy Projects and Campaigns
  16. dangermouse
    Post

    Anyone have trouble writing by hand?

    I’ve had problems with writing for many years. I find it really embarrassing at times.
    Post by: dangermouse, Feb 23, 2020 in forum: Home adaptations, mobility and personal care
  17. dangermouse
    Post

    ME advocates & groups you can endorse (=vote for) in the WegoHealth awards 2019

    Just catching up .... congratulations & extremely well deserved. Well done.
    Post by: dangermouse, Feb 20, 2020 in forum: General ME/CFS news
  18. dangermouse
    Post

    Do you get a lot of heat in your head with a ME headache?

    I get migraines often. Long lasting. Always on left side with aura. The pain is in head, eye, sinuses, jaw, teeth, neck, shoulder and arm. I...
    Post by: dangermouse, Feb 20, 2020 in forum: Pain and Inflammation
  19. dangermouse
    Post

    Using cognitive behaviour therapy techniques with people who hold delusional beliefs : Cox - Oct 2019

    If only :whistle:
    Post by: dangermouse, Feb 20, 2020 in forum: Other psychosomatic news and research
  20. dangermouse
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    Surprise surprise. It just gets better. I should be shocked but I’m not, I’ve recently been offered hypnotherapy .. yup.
    Post by: dangermouse, Feb 20, 2020 in forum: Other psychosomatic news and research
Showing results 1 to 20 of 242 Next >
Search Again
Page 1 of 13