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I haven't watched much, but one interesting side note Wes Ely made in the Q&A in regards to the Baricitinib Trial is, that they will be using ME/CFS questioners as well.

I made an auto transcript of the YouTube Version of this video (I checked the first sentences only, they seem to be correct) and did a machine translation into English. Prof. Dr. Lauterbach: I don't want to derail this thread, so moderators please (re)move this question if you want: Where are...

Livestream of the "Liegenddemo" in Berlin. The German Minister of Health had a short speech as well: There are protests in 12 cities. edit: Prof. Scheibenbogen said in her speech that the Federal Ministry of Education and Research picked 7 research projects (I think they are funded with the 15...

Thank you Simon! Great blog. Great to see such enthusiastic scientists.

Eric Topol wrote about this study in his newsletter: https://open.substack.com/pub/erictopol/p/lighting-up-long-covid?r=2gi8q&utm_campaign=post&utm_medium=email He writes:

Thank you! Looks like a lot of work.

https://www.cnbc.com/2023/12/13/how-doctors-are-using-googles-new-ai-models-for-health-care.html One interesting point in this article: My bolding. So the one area where AI probably could actually make a difference for patients, like pwME, and the doctors are not interested in it. Who would...

Someone suggested we apply pressure to those who are funding Cochrane. That might be a good idea. At the moment this review is the patients problem. One way to make it theirs would be to complain to the funding partners listed by Gatchaman. A thought: The local organisations could write to...

idk if some of the money will go into specific ME/CFS research. We will have to wait for the call to proposal I guess. Germany https://www.tagesschau.de/inland/long-covid-forschung-100.html

I can imagine similar studies coming in the next months/years from other well known BPS researcher. For example from the UK. My hope is that we have some proper therapy and biomedical studies when a refresh of the guidelines are due…

The problem with LC is that it is such a strong „brand“ that lots of researchers are getting confused what they are talking about. I know of discussions between researchers and doctors where some were talking about LC and meant people with organ damage, while others meant ME, while everyone was...

Has PolyBio lost interest in ME/CFS? The tweet says „#infection-associated chronic disease project updates, insights, and discussion.“ I flipped through the Nitter Thread and it was LongCovid. Have I overseen any ME-reasearch?

It looks like Relyviro was rejected by the EMA and is being re-examined. https://www.ema.europa.eu/en/medicines/human/summaries-opinion/albrioza I hope he gets funding for the ME study with more convincing results.

Yes. There is Prof. Henningsen, the German arm of Wessely et al., being active in press and in psychosomatic societies. He was involved (author) in the additional chapter of the new ME/CFS guideline questioning the whole ME/CFS chapter. He was also involved in the IQWiG process sending in a...

I don't have much energy, but here is a quick overview of what's been happening in Germany: Protests: The groundwork for the regained interest was laid in 2016 with the MillionsMissing protests. Over the years, these protests gained traction, peaking in 2019 with extensive media coverage...

Hi Tom, It is fascinating how good deepl has become. I had to do only minor changes and they messed up a number, which is fascinating. Data is is plural in German. I have contacted a colleague who is a researcher, as I am not quiet sure if „Satz von Umfragen“ is really the best translation. I...

@Tom Kindlon If you would be willing to write a short comment, I can help with the translation and paperwork. There are two ways to do it. You could write a general critique or about specific parts of the text. When you want to talk about specific parts it has to be a specific format. Chapter...

I don’t know the numbers, but Siemens SBK is probably one of the smallest public insurers.

Prof. Dr. Scheibenbogen will receive the Order of Merit of the Federal Republic of Germany. She has been campaigning for the interests of those with ME/CFS for over 10 years. It’s a big deal. Official announcement (machine translated): "Chronic Fatigue Syndrome is a disease that has a...

I like this quote.