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  1. FreeSarah

    ScienceAlert: Scientists Have Found an Important Reason You Might Want to Reconsider Taking Probiotics

    Interesting. Q. Is SIBO actually curable? Or once you've got it, is it just a matter of control?
  2. FreeSarah

    Who was it that said being in support groups leads to poor outcome?

    You’re being very unfair on old Michael. I totally blame PR and S4ME for the fact that I’m still ill. My mistake was joining an online patient support group when I had only been ill for 12 years. I’d probably be fine by now if it wasn’t for you lot. You bastards.
  3. FreeSarah

    The Lancet: UK life science research: time to burst the biomedical bubble

    I knew that phrase rang a bell. It popped up earlier today in the article linked from this thread. The article, from National Public Radio in the US, looks at the growing industry focussed on mining data about all of us and, in the US at least, using it to adjust (ie raise) insurance premiums...
  4. FreeSarah

    Five years before multiple sclerosis onset: Phenotyping the prodrome (2018) Wijnands et al

    Damn, that feels like important research. I'm not competent to assess its quality, though. Is it well conducted?
  5. FreeSarah

    Gluten-free need not taken seriously by radio prog

    I can only repeat that when I went gluten-free my calorie intake went up slightly, and as I was already eating healthily the only change in my diet and eating habits were a different formulation of bread and pasta to preclude wheat. Nothing else changed. No grazing or snacking before, none...
  6. FreeSarah

    Gluten-free need not taken seriously by radio prog

    I didn't suggest you were.
  7. FreeSarah

    Gluten-free need not taken seriously by radio prog

    Yeah, me. And a lot of other people who have the same experience exactly, some of whom have posted in this thread. They stop eating gluten, they lose weight. Often, as in my case, rapidly going from being overweight to being a healthy weight, with nothing changing except avoiding gluten. You...
  8. FreeSarah

    Gluten-free need not taken seriously by radio prog

    Don't know if you read my post, but the only thing I did was switch to gluten-free bread and pasta, and otherwise take care to avoid gluten. My calorie intake went up slightly because of the formulation of gf bread I was using, but the weight fell off. Carb content of gf bread and regular is...
  9. FreeSarah

    Gluten-free need not taken seriously by radio prog

    yep, I think the idea that gluten content of wheat has increased significantly has been shown to be wrong now. There's a theory that it's actually other characteristics of wheat that are problematic, as: [https://www.wheatbellyblog.com/2013/02/is-gluten-on-the-increase/] And this may be a...
  10. FreeSarah

    Gluten-free need not taken seriously by radio prog

    Ditto. I lost 20 pounds over 3 months with zero effort, just switched to GF bread and pasta. I was actually consuming more calories, yet the excess weight fell away, leaving me at pretty much my ideal body weight. Avoiding gluten also brought the biggest improvement in my symptoms I've had in 17...
  11. FreeSarah

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    you left out a couple of words, Trish: not give it credibility by conducting a [dodgy and unethical] clinical trial
  12. FreeSarah

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    The last 3 paragraphs of that letter should be required reading — for NICE, for Bristol University, for GPs, and for everyone who's ever said "I have a friend who was cured by the Lightning Process". Good grief. This is insane. Whenever the NHS flirts with something like homeopathy there's...
  13. FreeSarah

    What research do you want to see? (study ideas)

    For sure. I was very late joining in with forums like this, not doing so until more than 10 years into illness, and I was astonished to find some of the things I shared with other patients, alcohol intolerance being one of them. It seems such a simple, inescapably physical thing that it's...
  14. FreeSarah

    What research do you want to see? (study ideas)

    Being very specific, I'd love to see someone tackle the alcohol intolerance thing. A poll over on PR in 2010 had 62% unable to tolerate even small amounts of alcohol, and only 14% reporting no change or being able to drink more (! lucky buggers). This seems like such a specific and commonplace...
  15. FreeSarah

    David Tuller: Trial By Error: Waiting for Godlee

    Just a reminder: http://me-pedia.org/wiki/Lightning_Process#British_Advertising_Standards_Authority_.28ASA.29_ruling The Lightning Process — insufficient evidence for Hampshire Trading Standards and the ASA, just fine for the BMJ and Archives of Disease in Childhood
  16. FreeSarah

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    For sure, wtf. Inventor of untestable magical thinking system now training NHS doctors. The NHS must be suffering from some sort of mass delusion. Maybe Simon Wessely can help?
  17. FreeSarah

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    Yep, in recent times the NHS has shown itself willing to outsource 'therapies' to some pretty whacky organisations. Parker and the LP have been angling for a slice of that pie for some time and may well succeed.
  18. FreeSarah

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    I have to ask — if they were bed-bound, how did they do the Lightning Process? It's very intensive, runs all day for a number of days.
  19. FreeSarah

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    A friend of a friend who was bed-bound with 'ME' was completely cured by lying still and thinking about God for a year. Which is a lot cheaper than the Lightning Process. We need to get the diagnostics sorted out before anything else, otherwise this kind of stuff will always be with us. I'm in...
  20. FreeSarah

    Markers of non-coeliac wheat sensitivity in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2018, Alaedini et al

    Happily, a lot of brewers are now doing gf beers, some famous names included. Both Peroni and San Miguel gf versions are available at my local supermarket. Like you, I enjoy an occasional beer so it's a really great development
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