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  1. freddyV

    Supporting patients with long COVID return to work, 2021, Madan, Briggs and Chew-Graham

    Unfortunately, I was pushed out of my job, after losing just one term to ME. It took a year to secure a pension but with the loss of warranted enhancements. I have costed what this income reduction, and as I also held a further role beyond the classroom I probably lost £500,000 total income. Who...
  2. freddyV

    Chinese Herbal Medicines - discussion thread

    Posts moved from Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit After twelve or so years struggling with ME and trying to stay on top of my working life, I was pleased to see the arrival of a...
  3. freddyV

    BMJ Opinion: To speed progress in treating chronic conditions, engage patients and caregivers as research partners, 2021, Lubell

    So true, my strategy in dealing with ME is not to think about what I can't do, but have a simple target every day. However, my wonderful wife regularly sees me underachieving whilst I remain unaware how ill I am. It is no wonder "positive" outcomes are reported after GET, because we WANT to feel...
  4. freddyV

    Current forms and checklists for disability

    I have gone through the process 6 or 7 times now since being sacked after three months away from teaching by my fell running newly appointed 32 year head teacher who preferred to start her post with her appointments. The DWP are quite clear that a diagnosis or symptoms are inadequate "how it...
  5. freddyV

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    How many of us with long term ME when eventually visited by someone the first thing they say to you is "you look well"? In my case EVERY person virtually across the three decades plus. No wonder stock images are used...
  6. freddyV

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    As a 35 journeyman with ME who took Chinese Medicine to offset the worst of the presentations only to then lose my already damaged kidneys as a result of a toxin in the "tea", I too have been house bound for over two years since going to a DWP Tribunal which (of course) didn't end well. There is...
  7. freddyV

    What we're not being told about ME - UnHerd (Tom Chivers)

    With reference to ME sufferers turning up and harassing researchers... Really? After 35 years of illness, I count it as a win to get up and in to my garden. After a hospital visit for other issues, the rest of the week is lost. Who are these fit "sufferers" able to travel and kick up a fuss...
  8. freddyV

    Harassment claims in the media and social media.

    This post has been copied and the following discussion moved from this thread: What we're not being told about ME - UnHerd (Tom Chivers) With reference to ME sufferers turning up and harassing researchers... Really? After 35 years of illness, I count it as a win to get up and in to my garden...
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