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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Apologies if already posted. Very interesting that the Science Media Center not only gave a range of opinions in their rapid response. But Prof Kevin McConway , a Trustee of the SMC gave a very long and 'detailed' quote supporting the process applied to the M.E Nice Guideline development...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Unlike FaceBook , YouTube allows the viewer to dis-like a video, which feeds into the YouTube algorithm. Just got a thumbs down from me.!!!
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    I find the comments about Gulf War illness highly offensive. I [edit: Think I] remember a transcript of a lecture Wessley gave saying Gulf War illness (syndrome) could be easily explained by service personnel being worried about job losses due to defence cuts.
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    Functional Neurological Disorders - discussion thread

    rarediseases.org recommends https://www.neurosymptoms.org/en_GB/ which was set up in 2009 by Professor Jon Stone who co-authored , in 2020, the chapter "Functional neurological symptom disorder (conversion disorder)" with Sharpe for the "New Oxford Textbook of Psychiatry" in 2021...
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Combine the arguments within the articles "What if Havana syndrome is all in the mind?" and "More than half of Britons suffering from long Covid might not actually have it" and you get the Sharpe/UNUM strategy for dealing with long Covid. If half the those who claim to have debilitating...
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    Functional Neurological Disorders - discussion thread

    Wessley and co. would be the gatekeepers to the NHS and benefits.
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    Functional Neurological Disorders - discussion thread

    In todays Times online - No investigations "Not until we’ve ruled out psychogenic causes. " https://www.thetimes.co.uk/article/what-if-havana-syndrome-is-all-in-the-mind-zdhkvphnr
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    We should not look any deeper for the cause "Not until we’ve ruled out psychogenic causes. " . Feels like the start of a slow-burn campaign in response to the NICE Guidelines.
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    What if Havana syndrome is all in the mind? The start of a broad response to the new NICE guidlines?? "And it’s a question, in one form or another, that has recurred for me since, nearly 25 years ago, I read a book by the American academic Elaine Showalter called Hystories. Among a series of...
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    BPS attempts at psychologizing Long Covid

    "More than half of Britons suffering from long Covid might not actually have it Normal bouts of fever, headache, muscle ache and fatigue experienced by people might be mistaken for long Covid, says study" Hard to dismiss Long Covid so why not reduce the number who have it? Having the symptoms...
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    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    Mayo neurosurgeons saved her life, but she and her parents were unhappy with the care she was receiving in the rehabilitation unit, and they say they repeatedly asked for her to be transferred. But they say Mayo refused to let her transfer to another hospital, even after a lawyer wrote a letter...
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    CNN POTS article: “A doctor said it was all in her head“

    https://edition.cnn.com/2018/06/26/health/pots-tori-nick-foles-dysautonomia/index.html
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    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    Pretty good article on BBC news website about recent parliamentary debate “Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change...
    • c37
    • Thread
    • 2018 bbc carol monaghan debate pace trial parliament
    • Replies: 39
    • Forum: General ME/CFS news
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Those who have been arguing that the PACE trial had no effect on policy seem to have forgotten the PACE helped insurance companies Deney or limit claims. http://www.virology.ws/2017/08/07/trial-by-error-retired-pace-investigator-peter-white-and-swiss-re/
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