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  1. CFS_for_19_years
    Post

    The right to record medical consultations - UK and other countries

    USA residents: Opinion: It's Your Right To See Your Medical Records. It Shouldn't Be This Hard To Do...
    Post by: CFS_for_19_years, Sep 2, 2019 in forum: General clinical care
  2. CFS_for_19_years
    Post

    Heart Rate Variability and ME/CFS

    I'm curious about how you submerge your head in ice water. :confused:
    Post by: CFS_for_19_years, Aug 28, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  3. CFS_for_19_years
    Post

    The right to record medical consultations - UK and other countries

    In the US it also varies state-by-state; some states require one-person consent (usually the person doing the recording) or two-person consent....
    Post by: CFS_for_19_years, Aug 28, 2019 in forum: General clinical care
  4. CFS_for_19_years
    Post

    Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al

    Because people (patients) are machines; our brains and intuition and thoughts aren't to be trusted. Emotions n stuff.:banghead::arghh: If it...
    Post by: CFS_for_19_years, Aug 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. CFS_for_19_years
    Post

    Correcting medical records: Your rights

    I've submitted Addendums to my medical record numerous times, mostly for specialist visits. Here are the guidelines for correcting medical...
    Post by: CFS_for_19_years, Aug 18, 2019 in forum: General disability topics and advocacy
  6. CFS_for_19_years
    Post

    Drug given to enhance MRI images under scrutiny over side-effects

    FDA Requires New Warning On MRI 'Dyes' That Chuck Norris Says Poisoned His Wife December 26, 2017...
    Post by: CFS_for_19_years, Aug 18, 2019 in forum: Other health news and research
  7. CFS_for_19_years
    Post

    Acupuncture and other traditional Chinese medicine news and discussion thread

    Early on in my illness I went to one acupuncturist one day a week in the evening for about 12 weeks. The following day I would have enough energy...
    Post by: CFS_for_19_years, Aug 12, 2019 in forum: Other treatments
  8. CFS_for_19_years
    Post

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    From the article we're discussing: Reference #54, quoting his earlier work: White PD, Rickards H, Zeman AZJ. Time to end the distinction between...
    Post by: CFS_for_19_years, Aug 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. CFS_for_19_years
    Post

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    [ATTACH] [ATTACH]
    Post by: CFS_for_19_years, Aug 2, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. CFS_for_19_years
    Post

    Activity baseline vs activity ceiling, why concepts and language matter

    After being sick for 28 years this is more or less how I manage. Using heart rate monitors never appealed to me; even Lucinda Bateman recommends...
    Post by: CFS_for_19_years, Aug 2, 2019 in forum: General ME/CFS news
  11. CFS_for_19_years
    Post

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    MS has his say - gosh, really? [MEDIA]
    Post by: CFS_for_19_years, Aug 1, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. CFS_for_19_years
    Post

    Activity baseline vs activity ceiling, why concepts and language matter

    I agree that the concept of a baseline is a myth. When I wake up I don't know how many "spoons" I will have that day - maybe 5, maybe 1. And...
    Post by: CFS_for_19_years, Aug 1, 2019 in forum: General ME/CFS news
  13. CFS_for_19_years
    Post

    New Video: The PACE Trial: Part 2: Harm

    Great work! Just wanted to let you know that at 4:50, Dr. Paul Cheyney is not the correct spelling. His name is Cheney.
    Post by: CFS_for_19_years, Aug 1, 2019 in forum: Advocacy Projects and Campaigns
  14. CFS_for_19_years
    Post

    Sleep Education in Primary School Prevents Future School Refusal Behavior, 2019, Miike et al

    Their definition of CFS isn't even close to any the definitions we use: It's the same misuse of the term CFS when applied to mice that are forced...
    Post by: CFS_for_19_years, Jul 24, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. CFS_for_19_years
    Post

    K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019)

    Kutapressin was being discussed in 1994: https://www.prohealth.com/library/current-drug-treatment-trends-in-chronic-fatigue-syndrome-11381 The...
    Post by: CFS_for_19_years, Jul 2, 2019 in forum: Other treatments
  16. CFS_for_19_years
    Post

    Anger rumination mediates differences between fibromyalgia patients and healthy controls..., 2019, Toussaint et al

    Reading this made me angry.:mad:
    Post by: CFS_for_19_years, Jun 17, 2019 in forum: Other psychosomatic news and research
  17. CFS_for_19_years
    Post

    Vox: 'The War to Free Science', 2019, Resnick and Belluz

    From the Vox article above: Unpaywall: 4.5 star rating on Chrome Web Store 204,896 users on Chrome and Firefox
    Post by: CFS_for_19_years, Jun 17, 2019 in forum: Other health news and research
  18. CFS_for_19_years
    Post

    Neuropathic pain

    A lot of patients with Erythromelalgia don't have the redness, myself included. There was a survey of several hundred patients that confirmed...
    Post by: CFS_for_19_years, May 7, 2019 in forum: Pain and Inflammation
  19. CFS_for_19_years
    Post

    Neuropathic pain

    I think the reason one person may respond to one medication for neuropathy and another person won't may be due to the cause of the neuropathy,...
    Post by: CFS_for_19_years, Apr 12, 2019 in forum: Pain and Inflammation
  20. CFS_for_19_years
    Post

    Royal College of Physicians article: "Do you really believe in ME?" by Dr Nina Muirhead

    Were you thinking of this one? Mitochondrial DNA variants correlate with symptoms in myalgic encephalomyelitis/chronic fatigue syndrome (2016)...
    Post by: CFS_for_19_years, Apr 10, 2019 in forum: General ME/CFS news
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