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In Norway this study has been thrown around as validation for PRT by Silje Endresen Reme and Andreas Pahle in an article in Aftenposten from 25th of August this year. Reme and Pahle use PRT on patients with long term pain in a project at Ullevål Hospital in Oslo, Norway. Completely...

Edobean is now currently live on Twitch doing a charity fundraiser for OMF. She will do multiple live streams that will go on between April 15 and April 17. During these streams she will play Final Fantasy XIV, Persona 5, Pokemon, Mario, Shovel Knight, Legend of Zelda A Link to the Past and...

There's a 24 hour charity live stream for Open Medicine Foundation in progress now on Twitch. $911 raised so far, with 11 hours to go! Check it out here.

"We are looking to submit this Australian version of the Call-For-Change petition to the current Australian Disability Royal Commission and Australian Parliament to investigate the violence, neglect, abuse and exploitation currently occurring in the ME and CFS community due to outdated...

First media coverage by STV News in Scotland: https://news.stv.tv/west-central/campaigners-call-for-urgent-targeted-research-into-long-covid Video report on Youtube: Parenting with Long Covid: ‘I can’t be the mother I want to be for my little boy’ , Metro does a text on the protest...but says...

@winterwren Here's MEAction's MillionsMissing plans for 2022: https://millionsmissing.meaction.net/ In short, self-celebration in May and outward action in September.

Yes, it's all very similar to a certain other (or not so other) illness. There was media present in Scotland, but I haven't seen any articles online yet. I wouldn't bet on BBC News having anything about it though, eh. Well done to those who were there, it was great to see a protest, and a...

Today is the day for Twitter protest: Use the hashtag #researchlongcovid for more biomedical research into long covid and ME/cfs. Feel free to mention/target politicians or others of your choice. There's protests in London! Some tweets with images from the protests:

"But otherwise, the Holding Back The Years singer seemed in great health as he performed to a packed crowd at London’s O2 Arena on Wednesday night." These articles end on a positive spin 11 out of 10 times.

It's not the first time Asprusten does something on ME/cfs: https://ntnuopen.ntnu.no/ntnu-xmlui/browse?value=Asprusten,%20Tarjei%20T%C3%B8rre&type=author Including a somewhat similar one: https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2592468 and co-author on the music therapy study...

"Funny" how these guys co-ordinate their media strategies, but are ready to whine about patient activism if we even say a word, not to forget if we coordinate something out of their unethical eyes. Today they've had the text in Lancet, two articles in norwegian Dagbladet and Khrono, plus this...

It seems a final decision will be made on April 5th. Very good news, though!

There's more info in the application pdf I linked in my other post, but it's in Norwegian, and I don't think Google Translate translate whole PDFs. But here's a relevant section from the application: "The reason for the choice of data and method in the project 3.6 Explain the academic and...

The LP-study by Kennair and Landmark have unfortunately gotten a new ethical approval from REK (the Regional Ethics Committee): https://melivet-com.translate.goog/2022/02/08/kontroversiell-studie-far-ny-etisk-godkjenning/?_x_tr_sl=no&_x_tr_tl=en&_x_tr_hl=en-GB&_x_tr_pto=wapp The application to...

Nina Steinkopf has now written a blog post about yesterday's newspaper drama in Norway. English google-translated version: https://melivet-com.translate.goog/2022/02/04/dagbladet-svikter-me-syke-igjen/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=no&_x_tr_pto=wapp Original Norwegian version...

Dagbladet has worked their way down towards being one of the most tabloid of the tabloids, if not THE most tabloid newspaper in Norway, over the last decade or so. 15-20 years ago they were a competetive mediocre newspaper, eh. They removed most of what contextualized and supported the...

Someone calling themselves Long Covid Patient Action Group UK on Twitter has announced protests calling for more research into long covid outside parliament in London on the 9th of March, and a simultaneous "Twitter storm" for those too unwell to come: It's open for pwme to join: I'm not...

The fundraising campaign have raised 132 000 Euros so far, or 16,5% of what's the minimum goal of 800 000 euros. You can view the progress via the donation barometer at the bottom of this page: https://wir-fordern-forschung.org/en/ If anyone want to share this on Twitter you can use the...

It looks good now, @Forestvon. The text you pasted means "e-mail subscriptions are now turned off". "Annuler" means cancel, so not necessary, eh.

@Forestvon, if you want to unsubscribe you need to click on the "afmeld" link (which means unsubscribe) in the part of the text that reads like this: "Er du ikke interesseret i at høre, hvad der sker med dette andragende? Klik på linket nedenfor for at stoppe med at modtage...