I also have a new doctor who recommended that I get more exercise and drink caffeine in the afternoon when I get tired. I explained to her about...
Thank you all and especially @Jonathan Edwards for your thoughtful replies. Sometimes when my symptoms are worse I get desperate and start...
@Jonathan Edwards - thank you for your thorough response. The treatment ideas are under the heading "ME/CFS Treatment Recommendations." I've...
Thanks @oldtimer ! I was wondering if stimulants would ultimately be a bad idea. I get revved up and do too much then crash if I even have a cup...
Also curious what people's experiences have been with these treatments. Clearly, one would have to work closely with an immunologist to determine...
I recently discovered this resources list in the Bateman Horne Center resources website. https://batemanhornecenter.org/education/me-cfs/ Have...
It's true that many people w/ME aren't able to do anything beyond the basics, and some need help with the activities of daily living. I'm sorry to...
Thanks @rvallee !
Sorry about that!
https://www.theatlantic.com/health/archive/2024/01/long-covid-exercise-post-exertional-malaise/677242/
So, this seems like a helpful step. But, are they actually planning on doing more research? Ampligen seems like it may actually help, if I...
I agree that having a fuller range of narratives in the media would help people understand just how debilitating, and just how invisible, this...
:cry::banghead::mad:
Jonathan - is this a regional assessment? In my community, the hospital ICUs are full. No kids under 12 are vaccinated. And in many parts of the...
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