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This is what I never understand from these kinds of surveys: how can more than a half be "satisfied" with the clinic/programme if three quarters did not get better. And other discrepancies. If I was getting treatment and i would not get better, I would not be "satisfied" no matter how nice the...

According to some sources, this was later believed to be chronic brucellosis.

Cecile Jadin, based in South Africa, wrote a book on the subject of rickettsias and ME-like illnesses: Anecdotally, grown up in Europe and was fine, lived in Africa and was fine, travelled frequently to Asia and was fine, travelled frequently to Australia and was fine. Then back in the UK, a...

Can you please let me know how you know this? e.g. a link to where this appears. (thank you)

Here is an article in the Scottish Sun about Amanda. It has many heartbreaking details about her. ETA: the article is from August 2017 https://www.thescottishsun.co.uk/news/1445538/singer-amanda-hendrie-me-battle/

As I am now completely bedbound (can't turn on the side, for example), I suffer greatly in the heat and while my partner is away, I have all the fans in the house blowing air at me. One fan has a remote so i can regulate the flow and direction. I also have a small air cooler which is meant for...

Also, the mortgage interest benefit was only on a loan up to £125k (if I remember correctly, and this was lowered later) and not the actual interest people pay to the bank but a lower rate set by the government. Which would have left people well short, especially if they bought a property...

Just to add an anecdote to this. I sometimes manage to travel but my strict length I manage is 1.5 hours in a plane - during my really good periods of health (so once every 5 years or so). I prefer to fly to small airports. Once there were no flights available to a small airport so I had to...

Have you had this checked thoroughly? I understand this could be a sign of a recognised neurological disease (more than one, I think), not necessarily ME.

I would like to find out why rituximab works for some people (it seems to work well for a small group) so that those it is likely to work for can benefit. I don't want to lose this as a blind alley just because overall, the larger trial didn't benefit most.

I was working full time with frequent overtime, walked everywhere (e.g. 1 hour to work each way - people thought I was mad), went swimming every day and trained for a 5km charity run.... I gave myself a goal of running it in twice the world record time but soon found (after about 4 weeks...

I understand this is a personal testimony - but I don't understand how a therapist can be "fantastic" and "caring" when they didn't help and didn't care enough to find out about ME.

How about "If I had done my homework, I would have passed the test."

Here is an article from 2010 by a journalist who went undercover to investigate conversion therapy: https://www.independent.co.uk/news/uk/this-britain/the-ex-gay-files-the-bizarre-world-of-gay-to-straight-conversion-1884947.html And a follow-up by the same journalist...

No, you are not - I find that implies lack of attention to detail and disrespect in communication towards the audience - as if not bothering to re-read what the person has written before sending it off. Not how you would expect a professor at a world class university to communicate...

And how much time they get for this $40? (putting aside the possibility that they may things wrong again and again and how that adds up - in smaller places where I assume pay is lower than in e.g. Sydney)

A make-up salesperson 'educating' the medical community. About what, I wonder? How to apply eye shadow so that it looks good under the harsh lights in the operating room?

I see it now, figure 2, on the blue line, what looks like one participant aged 75-84 years. ETA: actually, it is a percentage of participants plotted on the left x-axis - so not sure if it was one person?

Hi Esther, I looked at the link but can't find what you mean - can you please let me know what/where it says how old this participant was?

Just catching up on this thread. Absurd. As if anyone would believe that an organisation the size of QMUL doesn't employ Access database administrators. Inefficient use of taxpayers' money, taxpayer (or someone representing the taxpayer - is there such an organisation?) should be complaning...