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    The causal status of pain catastrophizing: an experimental test with healthy participants, 2005, Severeijns et al

    Stupid test just showing lack of understanding in both the concept and basic observation of humans And of research basics. For a start they are just doing a childish poorly designed game on expectations with added play acting to pretend it’s a concept they are testing And even if expectations...
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    Diagnostic labels in functional disorders 2026 Novak

    A very important article to be keeping hold of the reference to given some who doubt the intention of certain individuals and Certain words and how they are used deliberately as double-speak Given the list of authors here which I think also deserve some highlighting
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    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    I'm not up to thinking out the best way/place to post this and interact it all in but I note that on facebook the following came up recently: I have no idea whether it focuses on eg those with severe peanut allergy or extends out. But I thought I'd link to it here but note could it perhaps...
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    Scottish ME/CFS clinical service provision

    And where has she suddenly come from and how has she suddenly landed in this spot where she will develop a service? I’m not following closely but it seems the announcement has come out of nowhere but, like when we had some of the app and other plans, that doesn’t mean it’s not because it hasn’t...
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    2025-2026 Norwegian chronic fatigue guidelines - draft published

    Indeed … and thereby separate cognitive exertion from eg long admin conversations being labelled as not due to something related to exhaustion and illness but ‘a cognitive dysfunction’ type misdirection
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    New Zealand: Dr Matthew Phillips, neurologist

    Have you looked at the website? He has a long section about his personal internal journey where he references a book “why greatness cannot be planned” for many paragraphs. I wonder if others on reading that website are thinking what I’m thinking but can’t find a way to say here…
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    New Zealand: Dr Matthew Phillips, neurologist

    Can you call it a “fellowship” and actually get away with it from a mid-selling and medical board point of view? I mean I know these people feel they have the right to their own ‘beliefs’ but I’m not sure those who also do but actually slogged a non-gap 3yrs real fellowship mightn’t be so happy...
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    A Digital Platform with Activity Tracking for Energy Management Support in Long COVID: A Randomised Controlled Trial, 2025, Hayes et al

    Quite a drop out rate too including nearly 50% in control which shows what an obligation writing the equivalent of diary entries is. I agree with @Sean that whilst I guess it’s the pr culture at the moment it’s all very only inside their own bubble and shows their industry up as pointless when...
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    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Interesting- I had an incredibly rude and unpleasant by ‘people I’ve seen over a lifetime now’ standards tutor at uni once so out it down to how vile she was (every time it was some made up reason to say she hated me that seemed to be for no reason to do with me) One time I was trying to...
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    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Ha! But useful for this audience. Wine is the alcohol I’ve been most obviously ‘sensitive to’ so never been ok with it ever, even when at certain points some other types I could manage as long as I could live with the aftermath etc (wine makes me incredibly drunkfrom just sips so I can’t even...
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    Action for ME: "How can we manage our wellbeing when interacting with others online"

    I sort of have less of an issue with this once I’ve realised it’s part of their magazine so is intended to be discussion ‘within the community’ and maybe there is also a variety of ages and familiarity with tech and social media and its drawbacks (and risks in the worst cases) etc before being...
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    British Association for Counselling and Psychotherapy 'Letter to the Ed' by Emma Hampson

    Agreed. It's interesting if it is the case that Emma's letter is in the BCAP magazine but the original was the Big Issue ie more 'general press' - was it also published or linked to from BCAP or 'the industry'? (scrap that one as an ME moment - I can see the original was in the BACP but was...
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    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    you are making me think of a grand designs episode (or something similar) where a building was built either into the earth or with grass on top of it and at least one side for climate control reasons of some sort - no memory of what it was material-wise underneath all of that
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    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    Sounds fantastic. I feel silly as a mere brit suggesting that focusing funds on blinds etc that you could ideally control pretty individually but that don't break, but in the current winter sun I've got the main one pulled down almost permanently atm so I don't have to drag myself up when I'm...
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    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    I don't know whether it defeats the point but the compromise I can think of (which might manage to not tick either box) could be having the separate building for the purposes of sound but it being close with a bridge making trip to the bathroom based in the home/house as short and simple as...
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    Effects of a Rehabilitation Programme Focused on Energy Management in People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome 2026, Portugal

    Genuinely curious on this question.... If someone ran GET today and was genuinely sincere and high integrity to ensure all impacts were collected, thereby showing harm, what position would that put the person who ran it in from a liability point of view? Is there something about not having a...
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    British Association for Counselling and Psychotherapy 'Letter to the Ed' by Emma Hampson

    That last line is a powerful point that we should remember and perhaps work up It certainly seems that at the moment the wellness gurus and bps etc are trying to sell to laypersons and new patients the idea that 'the way forward is to listen to those who recover [only]' and said in a way as if...
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    Abnormalities in response to vasopressin infusion in chronic fatigue syndrome, 2001, Altemus et al

    Thank you to the person who requested this (and other papers on the topic). I’m also personally very interested in this ie stuff that shows whether in those who it is indicated might theoretically benefit from something like this actually do experience it is worth while (inc the con of energy...
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    Healthcare Consumption and Work Absenteeism [post COVID]: The Role of Cognitive-Behavioural Factors…, 2026, Verveen, Knoop+

    Have I read that conclusion right? They’ve actually honestly reported cognitive behavioural factors do not explain the link between symptoms and increased healthcare use?
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