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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This thread is about a poll about breakthrough cases and if they lead to long covid. It's just a poll. Diana Zicklin Berrent on Twitter: "Since the @CDCgov won’t track breakthrough cases and if they lead to #LongCovid @Survivor_Corps decided to step in… We ran a poll of 1735 fully vaccinated...
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    BPS attempts at psychologizing Long Covid

    moved posts article here- "Why is Britain now the capital of long Covid?" - Google Docs #MEAction Network on Twitter: "Please DON'T share the link to the Sunday Times article as it will only promote the spread of reckless disinformation, and profit bad actors. Here's a link to the article...
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    US: COVID-19 Long Haulers Act (H.R. 2754) Has Been Introduced

    Based on my experience starting three decades ago as one of the few ME/CFS lobbyists, this looks good. I wish I was still able to be involved in it. We will eventually see if it helps us. A lot of efforts went into this and it is greatly appreciated. If I have this right- There was a...
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    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Rivka on Twitter: "✨1 month ago the PBS NewsHour aired an interview w me on #ChronicIllness, #MEcfs, #LongCovid & postviral illness. So far its gotten 117,500 views (!!) on PBS's social media platforms. That is a lot of awareness raising! Grateful to those who helped with spreading the...
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    Open Medicine Foundation (OMF)

    Phair is still posting on PR as HTester as recently as last Friday. Personally, all things considered, I'm satisfied with their progress.
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    General thread on functional disorders in Denmark

    Moved from: Trudie Chalder, BPS and MUS proponent - presentations, interviews and news. This is in reply to @ABrokenBattery's tweet. FraudListing on Twitter: "Currently creating a page about Per Fink’s ‘clinic for psychosomatics/functional disorders’ in Denmark. This is where Danish #ME...
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    ME Awareness Day / Week / Month, May 2021

    mary dimmock on Twitter: "@NINDSdirector - Yes, we've known this for years. But fixing the stigma, misinfo, lack of research & clinical community neglect/mistreatment requires your proactive leadership & a concrete, fully funded, national plan to fix it. Unreasonable to expect #pwme to...
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    ME Awareness Day / Week / Month, May 2021

    Michiel Tack on Twitter: "1) Today is ME/CFS Awareness Day. Michiel has been sick for 13 years and Evelien for 23 years. #MillionsMore #MEAction #YouAreNotAlone #MillionsMissing #MEAwareness #MEAwarenessDay #MECFS https://t.co/9QOr88oCJi" / Twitter
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    ME Awareness Day / Week / Month, May 2021

    Dan Wyke on Twitter: "Prayer for the Day on BBC Radio 4 this morning focused on #MECFS and #MEAwarenessDay. https://t.co/DQqffBTOIk" / Twitter
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    ME Awareness Day / Week / Month, May 2021

    May 12 is also Alem Matthees birthday. This is from his mother. postersandme on Twitter: "@TomKindlon https://t.co/gghuZ1zKyg" / Twitter
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    Who is Simon Wessely?

    That picture of Wessely is from the 2011 SMC manipulated propaganda campaign. Strange that they would use a decade old photo. Chronic fatigue syndrome researchers face death threats from militants | ME / Chronic fatigue syndrome | The Guardian Scientists investigating ME get 'death threats'...
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    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Read the Full Transcript Judy Woodruff: As we all hope and end to the pandemic is in sight, this past year leaves a spotlight on a disease often overlooked, chronic fatigue syndrome. This week, more than 1,000 people living with chronic illnesses lobbied members of Congress for more support...
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    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Carole Bruce on Twitter: "I hear a rumour that Prof Garner has secured large grants for studying GET for #LongCovid now. Despite all the evidence against it for #ME they persist with fervour. It’s tragic." / Twitter Carole Bruce on Twitter: "Rumour is from a very reliable source." / Twitter...
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    It would be very helpful if everybody would stop using initials instead of names as if everybody knows who they are referring to. Thank you. I had extensive personal experience with the damaging efforts to hijack our early advocacy efforts in the US by some people who were primarily...
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    The biology of coronavirus COVID-19 - including research and treatments

    These are two new articles. "What Doctors on the Front Lines Wish They’d Known a Month Ago" "At Lincoln Hospital in the Bronx, Dr. Nicholas Caputo followed 50 patients who arrived with low oxygen levels between 69 and 85 percent (95 is normal). After five minutes of proning, they had improved...
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    The biology of coronavirus COVID-19 - including research and treatments

    This video is from a NYC ER doctor about what unusual things he has been seeing in the sickest patients.
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