2021

  1. Dolphin

    Feasibility of Vitamin C in the treatment of post viral fatigue with focus on Long Covid, 2021, Vollbracht

    https://www.mdpi.com/2072-6643/13/4/1154
  2. Andy

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no evidence of greater harm after GES compared to specialist medical care at long-term follow-up. • The study showed that GES was probably...
  3. Sly Saint

    Stigma of IBS - dissertation study 2021

    eta: not a recommendation just for info.
  4. Andy

    Research survey: Young Disabled People’s Views and Experiences of Disability Activism across Europe

    Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience or are interested in disability activism and disability politics? If you answered yes to these questions then please consider taking part in this...
  5. Sly Saint

    Swiss Re: Expert Forum on secondary COVID-19 impacts, Feb 2021

    Expert Forum on secondary COVID-19 impacts Virtual Expert Forum with internal and external experts addressed the diagnosis, management, and prognosis of the most common lasting symptoms of COVID-19 14:10 Long-haulers and chronic fatigue Trends in fatigue due to Secondary COVID Syndrome...
  6. Sly Saint

    Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized, Double-Blind,Placebo-Controlled Trial,2021,Castro-Marrero

    Preprint Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Randomized, Double-Blind, Placebo-Controlled Trial " Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multisystem, and...
  7. Sly Saint

    IFM (Institute for Functional Medicine) conference: RESILIENCE AIC 2021 June 3 - 5

    "AIC 2021, Advancements in Clinical Research and Innovative Practices in Functional Medicine, will feature preeminent researchers, clinicians, and thought leaders presenting clinical content with a focus on the resilience of patients as well as practitioners. The conference will highlight the...
  8. Sly Saint

    Evaluation of natural killer cell assay performance on shipped blood specimens, 2021, Querec,Klimas,Unger

    " Abstract Documenting the importance of NK cell function as a biomarker for diseases and physiologic conditions including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), will require assays amenable to clinical implementation and standardization. Research studies typically perform...
  9. Andy

    Skewing of the B cell receptor repertoire in myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Sato et al

    Highlights • ME/CFS is characterized by skewed B cell receptor gene usage. • Upregulation of specific IGHV genes correlated to infection-related episodes at onset. • Plasmablasts of ME/CFS patients upregulated interferon response genes. • B cell receptor repertoire analysis can provide a useful...
  10. Andy

    Long COVID and Health Inequities: The Role of Primary Care, 2021, Berger, Greenhalgh et al

    Abstract Policy Points An estimated 700,000 people in the United States have “long COVID,” that is, symptoms of COVID‐19 persisting beyond three weeks. COVID‐19 and its long‐term sequelae are strongly influenced by social determinants such as poverty and by structural inequalities such as...
  11. Andy

    The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in [ME/CFS].., 2021, Malato et al

    Full title: The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: analysis of high-throughput genetic, epigenetic, and gene expression studies Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) show...
  12. ME/CFS Skeptic

    Dissecting the nature of post-exertional malaise, Hartle et al, 2021

    Background Post-exertional malaise (PEM) is a defining characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) but there is insufficient research dissecting the nature of PEM from the patients’ perspective. Methods A PEM questionnaire administered to 150 ME/CFS patients...
  13. Andy

    UK govt: Open consultation: Women's Health Strategy: Call for Evidence

    Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is seeking to collect views on women’s health. It will run for a period of 12 weeks and is open to everyone aged 16 and over. The easiest way to...
  14. wingate

    USA radio: NPR/WHYY Episode: The Aftermath of Viruses

    Interesting show about the aftermath of viruses on NPR station WHYY this morning. One segment focuses on long COVID. Includes interviews with an immunologist who studies long-term impacts of viruses on the body and a physician trying to help her many patients suffering from long COVID. Second...
  15. Sly Saint

    Article: ME & Long COVID; When Will Our Exhausted Cries Be Heard?, Revd Joe Haward, 24 March 2021

    Reverend Joe Haward shares his experiences of having ME and explores the challenges patients face in getting the reality of their lives with the disease heard by professionals and those in positions of power...
  16. Andy

    Case report: Recovery from refractory chronic fatigue syndrome with CBT and modafinil, 2021, Garg et al

    Abstract Many patients with chronic fatigue syndrome (CFS) fail to derive benefit from evidence-based treatments such as cognitive–behavioural therapy (CBT) and graded exercise therapy leading to permanent disability. To discover whether a repeat prescription of modafinil might potentiate the...
  17. Andy

    Association of core body temp & peripheral blood flow [..] w/pain [..], central sensitization & fibromyalgia.., 2021, Casas-Barragan et al

    Full title: Association of core body temperature and peripheral blood flow of the hands with pain intensity, pressure pain hypersensitivity, central sensitization, and fibromyalgia symptoms Our aim was to analyse body core temperature and peripheral vascular microcirculation at skin hypothenar...
  18. Andy

    Hypoxanthine Induces Muscular ATP Depletion and Fatigue via UCP2, 2021, Yin et al

    Hypoxanthine (Hx), an intermediate metabolite of the purine metabolism pathway which is dramatically increased in blood and skeletal muscle during muscle contraction and metabolism, is characterized as a marker of exercise exhaustion. However, the physiological effects of Hx on skeletal muscle...
  19. Sly Saint

    Statistical challenges of investigating a disease with a complex diagnosis, 2021, Nacul et al

    View ORCID ProfileJoao Torrado Malato, View ORCID ProfileLuis Graca, View ORCID ProfileLuis Nacul, View ORCID ProfileEliana Mattos Lacerda, View ORCID ProfileNuno Sepulveda Preprint Abstract Given the absence of a disease-specific biomarker, there are more than 20 symptoms-based case...
  20. Andy

    Chronic Illness Inclusion: Blog/talk on the high prevalence of energy limiting conditions and the psychological impact of not being believed

    Quote: "Catherine Hale spoke at It’s Our Community, a conference on social care reform. Catherine explained the high prevalence of energy limiting conditions and the psychological impact of not being believed. I was a social care user back in the 1990s. I’ve had my chronic illness for over...
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