disability

My letter in the Sunday Times: https://www.thetimes.com/article/7ca70835-10d8-4c7c-afc7-37a262ae4b30?shareToken=09b55d03e27e4597cf9cff05d050de27 Published version: Motability scheme As someone who has suffered from severe ME/CFS for more than 30 years, I can relate to Sir Ed Davey’s feelings...

Abstract: Whilst myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has recently attracted high-profile media coverage, dominant accounts do not tell the whole story of how this group of disabled people came to occupy – albeit unequally – society’s fringes. This article, platforming...

925 – A Population-Based Study of Functional Disability, COVID-19 Symptoms, and Long COVID Among US Adults Jincong Q. Freeman, Xinyi Li, Victoria Umutoni, Ted O. Akhiwu, Heather J. Hoffman [Line breaks added] Background COVID-19 can have long-term effects on health. People with disabilities...

Article from The Sick Times: Now offline: Government resources about Long COVID as a disability (headline refers to the US government)

My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. https://thesicktimes.org/2024/12/10/my-mom-was-disabled-by-me-but-i-didnt-understand-until-i-developed-long-covid-i-wrote-an-apology-letter-to-her/ EDIT: This instagram post has...

Most of the public stuff we see from medical and public health bodies is theater, political posturing. Whatever they say in public doesn't matter 1% as much as what goes on in administrative offices and how they make decisions, especially about expensive things like disability support. Money...

How to be an Effective Advocate for a Disabled Patient https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for Content warning: She lists some examples of patients who have died in the hospital including some who had ME/CFS.

Abstract: A group of debilitating health conditions disproportionately impacting women, increasingly known as ‘energy limiting conditions’, is associated with a long history of medical and societal disability denial. This article offers reflections on socio-cultural, bio-political and...

I’m curious.

Impact of long COVID on health-related quality-of-life: an OpenSAFELY population cohort study using patient-reported outcome measures OpenPROMPT Oliver Carlile and 105 others BACKGROUND Long COVID is a major problem affecting patient health, the health service, and the workforce. To optimise...

Disability News Service DWP set to waste thousands fighting release of two secret reports The Department for Work and Pensions (DWP) is set to waste thousands of pounds of public money fighting two rulings by the information commissioner that it must release secret reports affecting millions...

For the past five decades, patients with myalgic encephalomyelitis (ME) have struggled against the stereotype that their symptoms are “all in their heads.” With ME now appearing in roughly half the cases of long COVID (LC), some researchers and journalists have recycled old mythologies about ME...

6% of Workers' Comp Cases Are for Long COVID, But Many Can't Collect https://www.medscape.com/viewarticle/997416 (no paywall but may require free registration)

Free fulltext: https://www.cpj.edu.in/wp-content/uploads/2023/07/CPJ-Law-Journal-Issue-2-min.pdf#page=545 Rights of the Persons with Invisible Disabilities Ms. Suganya Jeba Sarojini* ABSTRACT Disability can be a very personal experience, making it very challenging to explain precisely. With...

ONS Health state life expectancies, UK: 2018 to 2020 1. Main Points Healthy life expectancy (HLE) at birth in the UK showed no significant change between 2015 to 2017 and 2018 to 2020. In Scotland, there was a statistically significant decrease of more than a year in male HLE at birth...

Fit For Work – Three Part Series on BBC Radio 4 by Jolyon Jenkins "For 30 years, governments have tried to get disabled people into work by toughening up benefit rules. Part of the motivation has been to cut the welfare bill, but it’s also been framed as an attempt to stop disabled people...

Ordeals and the Empathy Gap Sam Freedman 'Comment is Freed' substack Long read, UK focused but wider relevance: Exerpt An under-discussed aspect of covid policy was the speed with which government supported people financially and temporarily solved social problems. Furlough is widely seen as...

The Oxford Handbook of the Sociology of Disability Robyn Lewis Brown (ed.), Michelle Maroto (ed.), David Pettinicchio (ed.) The Oxford Handbook of the Sociology of Disability provides a timely and comprehensive overview of the wide range and depth of sociological theory and research on...

Resolution Foundation Costly differences: Living standards for working-age people with disabilities Omar El Dessouky & Charlie McCurdy The cost of living crisis has shone a harsh light on different groups’ ability to deal with fast- rising prices. In this briefing note, we focus on the living...

[I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is scheduled for Tues, Nov 15, 5 pm Eastern Standard Time. RSVP. Text of tweet: "I’m excited & honored to announce a “Science Journalism & Disability” Pop-up...