I've been seeing many lately and thought a thread could be useful. Either coming from Long Covid advocates or professionals interested in learning about ME, people sometimes send out open requests for information, papers or studies on a specific topic that may span many subjects.
Usually those...
Document attached to this post.
Source: https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf, which is a 'behind the scenes" link for this webpage, https://pmha-uk.org/
Internet archive link...
This briefing was prepared by a Science for ME working group of patients, most with a background in science and mathematics. The authors, including Tom Kindlon, Sean Kirby and Graham McPhee, have published over twenty papers and letters of expert commentary on the PACE trial and related matters...
I have previously shared the correspondence for 2004. Here it is for 2003.
I am getting these as and when I can. There is a limit to how much they will release and how often. Even if someone else asks it won't help as it will be seen as the same request. I'll post more when I get them.
I have...
University of Bristol has created a website with the documents from the SMILE trial.
http://www.bristol.ac.uk/ccah/resea...bility/chronic-fatigue/smile/smile-documents/
Note that does not include the data, of course.
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