home

Hi looking for any recommendations for a seat on castors to use in my kitchen so I can sit down in front of the work top and cooker to do food prep. My new kitchen is bigger than the old one and there are more steps involved between fridge surface and cooker. Just walking from my seat in...

https://www.theguardian.com/technology/askjack/2020/jan/23/which-is-the-best-pc-for-someone-who-has-parkinsons I thought some of the suggestions and advice on this article might be useful for ME/CFS patients. While I have a laptop so I can take it to and fro from home and caravan, I use...

I take my medicine early hours in the morning in the middle of my sleep; b blocker at 5 a.m. after a small snack and then 7 a.m. thyroid medicine. I usually sleep in between. I have to sleep in pitch dark and no noise. Absolutely no telephones or similar gadgets allowed in my bedroom for a...

Hi, I realize that this forum doesn't allow for medical advice. however I have a problem that affects my health but doesn't fall within the purview of medicine. It's staying warm while living outside. So I think its appropriate to ask for advice on this. I also figured a lot of people...

What's a source of protein that I can keep in my room (i.e. doesn't require refrigeration or cooking) for times when I am craving protein but nobody is around to fetch me food from the kitchen? (I am upstairs-bound due to our lack of stairlift.) I am allergic to nuts, so please don't suggest...

I have severe ME. I live with my parents. My mum is my principal carer. Mum and I want to get a stairlift. But Dad refuses because (a) it would spoil his aesthetic for the house, and (b) he thinks it would discourage me to try to use the stairs myself. I've only been up and down the stairs a...

Just saw this article, i'm seriously thinking of buying it https://slate.com/human-interest/2019/07/the-best-ipad-stand-tablet-holder-tryone-review.html

I'm thinking of getting one for sleeping in for when I get a cold or for when my COPD flares up. Does anyone else sleep in them? Are they comfortable enough? I usually pile up pillows in bed when I need to sleep upright, never that comfortable really, but when you have to you have to. Are...

Hello All, I don't know if any knows about or has had any experience with insulating rooms against noise to protect very noise sensitive ME sufferers? My daughter, Hannah, has deteriorated since first being diagnosed so that she is very sensitive to noise and light much of the time, sometimes...

Architect Anthony Clarke and pwME Anna Kerr spoke recently at the Emerge conference about designing homes taking into account our disease. I found it really fascinating and asked Anthony to write about it. Anthony also teaches architecture and Anna has gone to his classes to talk to students...

This post seeks to find if anyone has a decent apple and / or andorid app for speech to type. The reasons for this are twofold My stepbrother had a horrendous head injury years ago, and whilst he has made a remarkable recovery, the partial lobotomy necessitated for pressure reduction has induced...

I’ve been ready to move out of the city for a while, but the timing has just never been quite right. I am very fortunate that I was able to buy an apartment early on, first in the city where I went to university and later in Oslo with the down payment from the first one. It has been a great...

I’ve been trying to decide between renovating my bungalow (too big for me to maintain, I live alone, my kids are gone) or buying a new (second hand) house. Here is part I of the story, if you want to read it. https://www.s4me.info/threads/house-built-on-old-golf-course-yes-or-no.2731/ Since I...

I am looking into moving into a brand new house built on an old golf course. The golf course was closed in 2013 and the city bought it for residential development. This will be an amazing place to live, with lots of trees, parks, water, pedestrian and cycling paths and even a dog park! My...

I quite often wake up at night after a few hours' sleep because I'm too cold (especially at the moment). The solution doesn't seem to be to pile on more blankets because I'd be too hot to start with. I'd rather go to sleep and stay a comfortable temperature all night and not wake up at all...

I’ve just written a blog post about Smart Home technology and chronic illness life https://tipsforme.wordpress.com/2018/02/26/smart-home/ Has anyone else here been exploring this?

Hello Everyone, Several years ago, my wife and I bought a Select Comfort mattress that was heavenly. Over the years, the pillow-top that made it so nice has flattened - making pressure points at various points on my body (I’m a side sleeper. Best way I’ve found to not fight gravity to breathe...

We also have a Members Only thread on the topic: Using PCs, laptops: what's your set up? ******* I'm putting this in lifestyle management right now, but I wondered whether it was more general. The issue though is the problem of not being able to sit upright at a desk for any length of time...

I'm looking for a (preferably) two-part (9 + 4.5 tog) duvet that's genuinely lightweight. I'm pretty debilitated and my muscles are wasted so trying to cope with my current ten-ton one is becoming a problem. If I search on 'lightweight duvet' on Amazon, say, it comes up with plenty but I don't...

Have you bought something - whether a device or other product - which has helped you in some way as an ME patient? There are obvious things like pill cutters or heart rate monitors, but there might also be other things that help with household tasks or day to day chores. Or even with symptoms -...