This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written over the course of a year by Matt Lazell-Fairman, who has ME, and whom I know through his wife Katie. Matt is also the son of Mary Dimmock, who now...
Moderator note
This post has been copied and the discussion moved from the thread on Sharpe's original paper here:
https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/page-16#post-224660
A response from Carolyn...
https://www.thecut.com/2019/07/what-happens-when-lyme-disease-becomes-an-identity.html
This is a very long read and I've only skimmed through, but this is a topic I hoped someone would write about. From the comments it seems the article could be somewhat dismissive to patients.
This doesn't...
I apologize in advance for opening the discussion about whether we can call ME/CFS a disease or not. This topic is discussed sporadically in other threads and I thought it might be useful to make one for it, to collect our thoughts about it in a more structured manner. This subject may seem...
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