jen brea

  1. Dolphin

    Illness (In)action: CFS and #TimeForUnrest, 2021, Diedrich

    Illness (In)action: CFS and #TimeForUnrest Lisa Diedrich Literature and Medicine Johns Hopkins University Press Volume 39, Number 1, Spring 2021 pp. 8-14 10.1353/lm.2021.0001 Free: https://muse.jhu.edu/article/796703/summary I offer a snapshot of the multiple temporalities of chronic fatigue...
  2. InitialConditions

    Jen Brea to step down as Executive Director of MEAction to focus on health

    https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U "Today we announce that #MEAction’s co-founder and executive director, Jennifer Brea, is going to be transitioning to a board position so she can take time...
  3. K

    Article: When the Chronically Ill Go into Remission: Filmmaker Jennifer Brea’s Life After “Unrest”

    Excellent article in the Los Angeles Review of Books about the trauma of illness and the double edge of remission. Written by Megan Moodie, who shares her own experiences with chronic pain and illness...
  4. Sly Saint

    Media Impact Award 2019 Invisible Disabilities Association goes to Jen Brea

    "Jennifer Brea is impacting the world for people living with the invisible disability, M.E. with her award winning film, "Unrest!" https://www.InvisibleDisabilities.org Jennifer Brea was selected to be IDA's first ever Media Impact Award, because of her incredible passion and determination to...
  5. Dr Carrot

    Jen Brea: My ME is in remission

  6. Sly Saint

    Do you have ICC-ME and other FAQs - Jen Brea

    "bad definitions have made this diagnosis heterogenous beyond recognition and how many doctors still diagnose people they don’t know what to do with with “chronic fatigue syndrome” by exclusion rather than after thorough investigation and the use of more accurate criteria." full blog here...
  7. Sly Saint

    Canada: 19th Annual Illuminations Jan 2019 - guest speaker Jen Brea

    "Date January 24, 2019 Time 11:30am - 2:00pm Location Fairmont Waterfront, 900 Canada Pl, Vancouver BC Illuminations is our much-anticipated signature luncheon focusing on the work of the Women’s Health Research Institute. The luncheon offers members of the community the opportunity to join us...
  8. J

    Epidemiology of ME and CFS

    In conjunction with the master list of facts @JaimeS is discussing in this thread (https://www.s4me.info/threads/a-masterlist-of-me-facts-the-citations-that-support-them.5315/unread), I would love help improving MEpedia's epidemiology page...
  9. J

    Treatment of ME patients in ERs and Hospitals

    Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...
  10. Sasha

    Jen Brea starting column to answer community questions on #MEAction & general organising/advocacy - invites questions

    https://twitter.com/jenbrea/status/1020024278270406656
  11. Sasha

    Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

    @JenB is tweeting about a review she's doing of the 'atypical poliomyelitis' approach to ME/CFS she's doing for MEpedia and asked: https://twitter.com/jenbrea/status/1016917192426655745 IIRC it was to do with people's concerns about the validity of the testing but I'm not sure and don't know...
  12. Andy

    #MEAction: Next steps: a letter to our community [from Jen Brea]

    https://www.meaction.net/2018/06/28/next-steps-a-letter-to-our-community/
  13. Andy

    USA: JAX ME/CFS Center and Derya Unutmaz news

    Read more here https://batemanhornecenter.org/dr-derya-unutmaz-explains-collaborative-research-center-crc-bhc/
  14. Sasha

    Jen Brea $100,000 crowdfund for 2018 #MEAction activities

    You'll need to unmute the audio: Donation page here: Please retweet: And share on FB - except I can't seem to provide a link without just inserting the video here. :(
  15. A

    CBT- Jen Brea Twitter

    From twitter Hit link.to see thread
  16. Sly Saint

    Australian radio program: Jen Brea & Panel Discussion

    Uncommon Sense with Amy Mullins "Tuesday 13th March: US film director Jennifer Brea will talk to Amy about her Oscar-shortlisted documentary Unrest, which chronicles her experience and the experiences of many others who have gone "missing" – the sufferers of the significantly debilitating...
  17. Sly Saint

    Jen Brea - Lavin agency speaker

    " THE LAVIN AGENCY is the world’s largest intellectual talent agency, representing leading thinkers for speaking engagements, personal appearances, consulting, and endorsements." Jen Brea: " Speech Topics Overcoming a Misunderstood Illness A Story of Hope, Resilience, and Modern Medicine In...
  18. Sly Saint

    ProHealth is Proud to Announce its 2017 ME/CFS Patient Advocate of the Year: Jennifer Brea

    " In 2017, Jen Brea did the impossible. She catapulted ME/CFS onto the public stage, and into the international spotlight, all in one fell swoop with her film, Unrest. Brea’s moving documentary has been received with universal acclaim. It has been reviewed by the New York Times, the Wall Street...
  19. Cheshire

    Jen Brea's #UnrestPBS twitter chat (numerous guests)

    Happening right now, twitter chat with Jen Brea and Michael VanElzakker
  20. Alvin

    Jen Brea's comments on the article Time for Unrest: Why patients with ME are demanding justice (image heavy)

    @_NathalieWright's withering @Independent piece lays bear the gaps in how #mecfs is viewed on either side of the pond and the vested interests that have contributed to the disability and death of millions...
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