longcovid

  1. H

    US TOPx HHS AI & Tech Sprint Update: Visit https://invisibleillness.crowdicity.com/ to register & vote for Team Healthful & $200k to support our work

    Dear Esteemed @S4ME Members: After engaging with this forum (please accept our sincerest appreciation), speaking with hundreds living with ME/CFS and Long COVID, and collectively spending over 1,000 human hours over the past eight weeks, our Team Healthful is proud to announce that we have...
  2. C

    2024: Looking for scientific minds for live Twitter Space discussion

    Does anyone have a strong technical/research background and be interested in speaking to the community on ME/CFS research? I held a Twitter (or X now) Space about a week ago on research in ME/CFS and Long COVID, which was very successful. I’d like to bring on a few “panelists” to have a...
  3. S

    New German Trial for Rituximab? (High Dose)

    Hi all, its appears a German Dr, Dr Habets who is an Oncologist, is undertaking a trial (or just randomly treating its very hard to tell) with Rituximab in Long COVID and Me/cfs patients who test positive for GCPR aabs via bioassay (ie not ELISA). Its REALLY hard to fully understand what is...
  4. Grigor

    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    Very troubling study by prof Knoop et al. "ONDERZOEKSVRAAG To investigate whether delivering timely Cognitive Behavioural Therapy [CBT], an evidence-based treatment for chronic fatigue, is effective in preventing the development of post-COVID-19 chronic fatigue. URGENTIE A substantial...
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