Summary
Background
Older people admitted to hospital in an emergency often have prolonged inpatient stays that worsen their outcomes, increase health-care costs, and reduce bed availability. Growing evidence suggests that the biopsychosocial complexity of their problems, which include cognitive...
Note: There are two services in Oxfordshire dedicated to help patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): the OUH ME/CFS Service - and the Oxford Health ME/CFS Service.
Website updated Dec 2021
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Service...
Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis
Peter White, Susan Abbey, Brian Angus, Harriet A Ball, Dedra S Buchwald, Christine Burness, Alan J Carson, Trudie Chalder, Daniel J Clauw, Jan...
Thought it could be helpful to have an own thread on EURONET-SOMA.
From the blurb:
Persistent somatic symptoms are common and complex phenomena which pose major challenges to psychosomatics and many other medical specialties across Europe.
[...]
Chronic courses of disorders are common and...
very long piece (I've only skimmed through it).
https://newrepublic.com/article/168965/might-long-covid-wrong
eta:
(from Esther12)
Archive link that avoids giving them clicks:
https://archive.vn/L471V
Blog posts on the blog called Healthcare Hubris
Spotlight on ME/CFS: Who is lobbying whom? by Jo Hunt
part 1
part 2
Covers some of the interactions between Wessely, Aylward and White and the DWP in the early 1990's based on archive material obtained using FOI by Valerie Eliot Smith.
Link to...
"The news article on medical gaslighting raises the important point that doctors should always accept patient concerns about symptoms and never dismiss them as imaginary.1 But …"
Paywalled, https://www.bmj.com/content/378/bmj.o2236
This seems to be a published rapid response to a BMJ News...
https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c9-3ebe-4faf-b3bc-e01257e82c65).html
Abstract (Paragraphs mine for legibility)
Chronic fatigue syndrome (CFS), sometimes referred to as myalgic...
https://www.theguardian.com/society/2021/aug/30/withdrawal-planned-guidance-me-leaves-patients-distraught
Natalie Grover seems to be getting nearer to understanding the problem, even if still a little way away. Some reasonable quotes from me. Some from Sharpe and Chalder as well.
This post is copied and some posts discussing the article moved from this thread.
BMJ feature: Chronic fatigue syndrome and long covid: moving beyond the controversy
Long article, which starts with fun stuff like:
“I submitted the first positive trial of cognitive behavioural therapy [CBT] as...
6th Annual Scientific Conference of the European Association of Psychosomatic Medicine (EAPM 2018) incl. several CFS studies
via Dr. Marc-Alexander Fluks
Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection
Published online by Cambridge University Press: 11 April 2018
"
Editor's summary
In a recent Round the Corner, Mitchell commented on a Cochrane Review of exercise therapy for chronic fatigue syndrome (CFS). One of the...
obviously not new.
"
Summary
Background
The PACE trial found that, when added to specialist medical care (SMC), cognitive behavioural therapy (CBT), or graded exercise therapy (GET) were superior to adaptive pacing therapy (APT) or SMC alone in improving fatigue and physical functioning in...
OBJECTIVES--To determine the symptomatic and functional status during follow up of patients referred to hospital with unexplained fatigue and to identify patient variables associated with persistent functional impairment.
DESIGN--Follow up by postal questionnaire six weeks to four years...
https://www.acpjournals.org/do/10.5555/comment1538/full/
Name: Peter C. Rowe
Email: XXXXXXXXXXXXXXXX
Affiliation: Johns Hopkins University
Pubdate: 12 April 2019
Title: Response to Michael Sharpe
Comment: To The Editor:
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