misinformation

Hey everyone! Just wanted to flag concern about an NHS GP practice called Camphill in Scotland, which has a huge array of ‘wellness’ resources on their website. Some are fine and I have no issue with them but others I find problematic and inappropriate. In these resources they say that Fibro...

A good example of an AI platform that is obviously tuned and biased towards a cherry-picked editorial viewpoint of ME/CFS. I'm not sure where to place this, I went with the fact that it seems built by Mayo. The platform is marketed as "the leading medical information platform". Which is...

I'm guessing that the link at the end is the source of their information(?). but if its for the UK why pick US info? not much thought seems to have gone into this. https://ukfibromyalgia.com/blog/me-amp-cfs

Somebody has started a petition asking the ABC (Australian Broadcasting Corporation, our version of the BBC) to address Norman Swan's comments on ME/CFS and Long Covid. The ABC is Swan's long term employer, and his primary platform (mainly as the weekly Health Report). Stop the ABC from...

Interesting article about "a wildly popular UW [University of Washington] course taught by Bergstrom and West, 'Calling Bullshit: Data Reasoning in a Digital World,' and a book with a similar name." https://artsci.washington.edu/news/2023-09/hows-your-bs-detector (line breaks added) FYI...

I came across this project recently documenting ways to deal with disinformation. Given the way some researchers are determined to spread misinformation I thought it may be interesting in terms of suggested approaches. They say the WHO was using it to try to counter vaccine misinformation...

Exercise Therapy for Chronic Fatigue Syndrome You Must Know (consumerhealthdigest.com)

Feeling totally depleted? Here's the 10 signs that you're exhausted (msn.com) groan; the NHS and Dr Myhill.

The largest media outlet that has used it seems to be the Independent newspaper in the UK. Put the following into a search engine and you should find most or all articles that mention it: "Dr Anand Patel" "Covid has made ME more" A version that is freely available is here...

Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise...

Page 12 of the APPG report Rethinking ME states: Is this true? If so, to what degree? And over what period? I'd be grateful if anyone could let me have the evidence. There is no citation for this statement in the report. A previous sentence within the paragraph (stating that recovery is...

A topic that has extra relevance given Shepherd's expulsion from the NICE committee and weaponizing the monitoring of online content in favor of a political narrative (and also let's say it clearly: for self-interest). This is related mainly to discussions in certain governments, prominently the...

https://www.nytimes.com/2021/07/24/technology/joseph-mercola-coronavirus-misinformation-online.html?action=click&module=Spotlight&pgtype=Homepage The Most Influential Spreader of Coronavirus Misinformation Online Researchers and regulators say Joseph Mercola, an osteopathic physician, creates...

https://en.wikipedia.org/wiki/Fibromyalgia#cite_note-Goldenberg1999-41 I was browsing the Fibromyalgia Wikipedia article when I came across this: The reference is: Goldenberg DL (April 1999). "Fibromyalgia syndrome a decade later: what have we learned?". Archives of Internal Medicine. 159...

"The Lady's Handbook for Her Mysterious Illness" author on the only recourse for ailing women who are being ignored https://www.salon.com/2020/04/07/ladys-handbook-for-her-mysterious-illness-sarah-ramey-book/

Not listened to this but thought it might be of interest. https://www.bbc.co.uk/sounds/play/m000c9sm

https://www.meaction.net/2019/03/23/our-community-will-not-suffer-stigma-and-distortion/

EDIT: Please read @adambeyoncelowe 's comment first: Writing about Chronic Fatigue Syndrome: What Should Every Student Know? by Joe Blair, Health Thoroughfare (not a serious site), 19.03.2019 :arghh::confused::grumpy...

full text requires registration https://jamanetwork.com/journals/jama/article-abstract/2716411?utm_source=twitter&utm_campaign=content-shareicons&utm_content=article_engagement&utm_medium=social&utm_term=121918#.XBotBT5dmv0.twitter (link to this article was tweeted by Michael...