patient organisation

  1. Hutan

    What can we reasonably expect of our patient charities in terms of disease management advice?

    I am interested in your views about what it is reasonable to expect of our patient charities in terms of the quality of medical and management advice they provide, on websites and information booklets, and by staff when they speak directly with the public. An AI query tells me that patient...
  2. Hutan

    ME/CFS and Long Covid charities/ organisations - International and National

    I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world. We can add to it as we find them. Please post below with organisations and a website and contact...
  3. R

    ME patient organisations and evidence based information for their members

    This post has been copied and following posts copied or moved from this thread: News from Australia I found this thought provoking - how do we get more understanding? The dilemma for medical professionals This programme highlighted for me the dilemma that medical professionals have. They need...
  4. Andy

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    Paywalled at https://link.springer.com/article/10.1007/s11673-018-9866-5
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