priority setting partnership

There is the opportunity to support this proposal by signing an open letter hosted by Organise Network, here: https://organise.network/actions/petition-a-proposal-for-an-me-cfs-long-c-xWkB_pcn/saf/take-action?utm_source=share&utm_medium=clipboard&utm_campaign=505a358c-8a1d-48ff-b55c-847346df5fe9...

Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum McDuff, Kiera; Brown, Darren A.; Gross, Douglas P.; Faghy, Mark A.; Davenport, Todd E.; Audette, Jennifer; Bassi, Laura; Bull, Michelle; Cobbing, Saul E.; Décary, Simon; Flynn...

Introduction Long COVID is a life-limiting condition that affects 65 million people worldwide. It devastates lives with uncertain illness trajectories, and yet, there are many research uncertainties as there is a lack of understanding of its causes, effective treatments and management plans. We...

"Applications are invited for grants to be awarded in 2022 by Crohn’s & Colitis UK. Grants up to a maximum of £100,000 for up to three years are available to fund research into Crohn’s Disease, Ulcerative Colitis or other types of Inflammatory Bowel Disease (IBD). This year, we would like to...

The initial thread for the ME/CFS Priority Setting Partnership is here, UK: Priority Setting Partnership for ME/CFS, but this thread is aimed at allowing discussion of what people might suggest in their individual submissions, and allows for non-UK folks to provide a level of input as well (as...

Dutch researchers involved, what could possibly go wrong.... https://www.york.ac.uk/healthsciences/research/mental-health/projects/mnyes/ The Steering Group (which looks very over-balanced in favour of 'professionals') And their current survey...

[ETA: The published version can be found here, Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting exercise, 2022, Tyson et al] This being announced/launched today at the CMRC conference, see UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and...

Sent to me by very supportive patient advocate for ME and CFS in Norfolk for nearly 40 years Dr Patrick Thompson ! "There is a mismatch between research questions which are considered to be important by patients, carers and healthcare professionals and the research performed in many fields of...