Now published - link here
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Preprint
From @MSEsperanza:
"The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences with inpatient rehabilitation for long/post COVID, Hammer et al [full text in German only]
Abstract...
A technology-enabled multi-disciplinary team-based care model for the management of Long COVID and other fatiguing illnesses within a federally qualified health center: protocol for a two-arm, single-blind, pragmatic, quality improvement professional cluster randomized controlled trial...
Long COVID Rehabilitation: A Guide for Health Care Professionals
$199
Long Covid Rehabilitation: A Guide for Healthcare Professionals is a comprehensive online course designed to provide rehabilitation professionals with the knowledge and skills necessary to effectively treat patients with Long...
Abstract:
Post-COVID-19 syndrome is an ongoing challenge for healthcare systems as well as for society. The clinical picture of post-COVID-19 syndrome is heterogeneous, including fatigue, sleep disturbances, pain, hair loss, and gastrointestinal symptoms such as chronic diarrhea. Neurological...
Full title: Do diagnostic criteria for ME matter to patient experience with services and interventions? Key results from an online RDS survey targeting fatigue patients in Norway
Abstract:
Public health and welfare systems request documentation on approaches to diagnose, treat, and manage...
My experience with ME/CFS and implications: A personal narrative
Sirotiak Z
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic, debilitating health condition characterized by overwhelming fatigue and post-exertional malaise, or exacerbation of symptoms following physical...
Copied post
A master thesis on ME from 2021 at NTNU, I think the patients are from Coperio rehab centre:
Translation of the text in the image (reformatted by me):
The patients are separated into four subgroups, based on a screening of individual needs and goals. These subgroups are as...
Full title: Effects of a concurrent training, respiratory muscle exercise and self-management recommendations on recovery from post-COVID-19 conditions: the RECOVE trial
Abstract
The aim of this study was to determine the effectiveness of physical exercise, respiratory muscle training and the...
Full title: Fatigue, post-exertional malaise and orthostatic intolerance: a map of Cochrane evidence relevant to rehabilitation for people with post COVID-19 condition
INTRODUCTION: Rehabilitation focuses on impairments, activity limitations and participation restrictions being informed by the...
Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS
other authors include
Anna Gregorowski (BACME)
Hiremath, S.; Doukrou, M.; Flannery, H.; Carey, C...
Background:
Emerging evidence suggests that globally, between 30-50% of those who are infected with Coronavirus Disease 2019 (COVID-19) experience Long COVID (LC) symptoms. These symptoms create challenges with return-to-work (RTW) in a high proportion of individuals with LC. In order to tailor...
Management of traumatic brain injury (TBI): a clinical neuroscience-led pathway for the NHS
Lucia M Li, NIHR clinical lecturer,A Michael D Dilley, consultant neuropsychiatrist,B Alan Carson, consultant neuropsychiatrist and honorary professor,C Jaq Twelftree, AHP consultant in...
https://www.clinicaltrials.gov/ct2/show/NCT05130736?term=balance&recrs=ab&cond=me/cfs&draw=2&rank=2
Recruiting
Sponsor: Poznan University of Medical Sciences
Collaborators: EGZOTech sp. z o.o.; Szpital Wojewódzki w Poznaniu
Condition: Post-viral fatigue syndrome
The aim of the study is to...
Abstract
Being physically active has positive effects on fibromyalgia functioning. However, promoting an active lifestyle in these patients continues to be a relevant clinical challenge. Our aim was to test a motivational model to explain light (LPA) and moderate-vigorous physical activity...
Excerpts from the letter:
Nowadays, there are several recommendations/guidelines related to the management of long COVID-19 patient [6–10]. These guidelines target the specialist physicians, mainly pulmonologists [6], cardiologists [8], physical medicine and rehabilitation specialists [7], or a...
Abstract
Objective
To analyze opioid intake interference with psychological, well-being, and functional outcomes and medication tapering in patients with fibromyalgia admitted to the Mayo Clinic Pain Rehabilitation Program (MCPRP) in Florida.
Patients and Methods
A retrospective study on MCPRP...
Hüppe A, Langbrandtner J, Lill C, Raspe H. The Effectiveness of Actively Induced Medical Rehabilitation in Chronic Inflammatory Bowel Disease. Dtsch Arztebl Int. 2020 Feb 7;117(6):89-96. doi: 10.3238/arztebl.2020.0089. PMID: 32102728; PMCID: PMC7075457...
Masano Health AB is a privately owned digital rehab company in Sweden. It's a quite new company, started in November-December 2020 according to information on their website.
They updated their website yesterday to add information about their digital rehab for ME/CFS...
Phillips M, Turner-Stokes L, Wade D, et al. Rehabilitation in the wake of COVID-19-A phoenix from the ashes. Br Soc Rehabil Med [Updated 2020 Apr 27; cited 2020 Dec 27]. Available from: https://www.bsrm.org.uk/downloads/covid-19bsrmissue1-published-27-4-2020.pdf...
This seems like a competent person that can communicate the issues well. ME/CFS and PEM are mentioned in the article.
https://translate.google.com/translate?sl=de&tl=en&u=https://www.linkedin.com/pulse/der-umgang-mit-den-sp%25C3%25A4tfolgen-corona-pandemie-claudia-ellert
Dear Sirs and Madames...
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