Does anyone have a strong technical/research background and be interested in speaking to the community on ME/CFS research?
I held a Twitter (or X now) Space about a week ago on research in ME/CFS and Long COVID, which was very successful. I’d like to bring on a few “panelists” to have a...
[I didn't know where to put this - please move if needed]
Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is scheduled for Tues, Nov 15, 5 pm Eastern Standard Time. RSVP.
Text of tweet:
"I’m excited & honored to announce a “Science Journalism & Disability” Pop-up...
A topic that has extra relevance given Shepherd's expulsion from the NICE committee and weaponizing the monitoring of online content in favor of a political narrative (and also let's say it clearly: for self-interest). This is related mainly to discussions in certain governments, prominently the...
In this article, we define questionable measurement practices (QMPs) as decisions researchers make that raise doubts about the validity of the measures, and ultimately the validity of study conclusions. Doubts arise for a host of reasons, including a lack of transparency, ignorance, negligence...
Initially, I intended to write this as a response in another post, but I think it deserves its own post now. These thoughts have followed me for quite some time. I'd be interested in reading what your view on this is.
I often bring this up because I can't concur with this kind of logic as I...
PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the malaise/fatigue interval because this is when the disease's mechanism of action is amplified and certain biomarkers should stick out and be clearer. Maybe...
Hi all,
Just flagging the "MECFS Patient Researcher Accolade Portfolio" @mecfspatientresearchers on Facebook at https://www.facebook.com/mecfspatientresearchers/
You will recognise a number of research heroes. There are other profiles in the works, once gotten round to (energy permitting)...
full editorial here:
https://jamanetwork.com/journals/jama/fullarticle/2756117
(note, article was retweeted by MS who is now 65th President and Chairman of the Board of the Academy of Consultation-Liaison Psychiatry)
https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/news-parliament-2017/my-science-inquiry-launch-17-19/
The Committee are asking people in the science community to submit topics that they think the committee should look into. 200 word...
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