science

  1. C

    2024: Looking for scientific minds for live Twitter Space discussion

    Does anyone have a strong technical/research background and be interested in speaking to the community on ME/CFS research? I held a Twitter (or X now) Space about a week ago on research in ME/CFS and Long COVID, which was very successful. I’d like to bring on a few “panelists” to have a...
  2. ahimsa

    “Science Journalism & Disability” Pop-up Panel & Discussion on Tuesday, November 15

    [I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is scheduled for Tues, Nov 15, 5 pm Eastern Standard Time. RSVP. Text of tweet: "I’m excited & honored to announce a “Science Journalism & Disability” Pop-up...
  3. rvallee

    Article: Disentangling Disinformation: Not As Easy As It Looks

    A topic that has extra relevance given Shepherd's expulsion from the NICE committee and weaponizing the monitoring of online content in favor of a political narrative (and also let's say it clearly: for self-interest). This is related mainly to discussions in certain governments, prominently the...
  4. rvallee

    Measurement Schmeasurement: Questionable Measurement Practices and How to Avoid Them

    In this article, we define questionable measurement practices (QMPs) as decisions researchers make that raise doubts about the validity of the measures, and ultimately the validity of study conclusions. Doubts arise for a host of reasons, including a lack of transparency, ignorance, negligence...
  5. M

    Rethinking The Purpose of Diagnostics

    Initially, I intended to write this as a response in another post, but I think it deserves its own post now. These thoughts have followed me for quite some time. I'd be interested in reading what your view on this is. I often bring this up because I can't concur with this kind of logic as I...
  6. M

    Studies and data on Post-exertional malaise (PEM)

    PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the malaise/fatigue interval because this is when the disease's mechanism of action is amplified and certain biomarkers should stick out and be clearer. Maybe...
  7. InfiniteRubix

    MECFS Patient Researcher Accolade Portfolio

    Hi all, Just flagging the "MECFS Patient Researcher Accolade Portfolio" @mecfspatientresearchers on Facebook at https://www.facebook.com/mecfspatientresearchers/ You will recognise a number of research heroes. There are other profiles in the works, once gotten round to (energy permitting)...
  8. Sly Saint

    Article: Open-access science funders announce price transparency rules for publishers- May 2020

    full article here https://www.sciencemag.org/news/2020/05/open-access-science-funders-announce-price-transparency-rules-publishers#
  9. Sly Saint

    Editorial: The Challenges of Sharing Data in an Era of Politicized Science - Bauchner,Fontanarosa Nov 2019

    full editorial here: https://jamanetwork.com/journals/jama/fullarticle/2756117 (note, article was retweeted by MS who is now 65th President and Chairman of the Board of the Academy of Consultation-Liaison Psychiatry)
  10. NelliePledge

    U.K. House of Commons Science committee public can propose topics by 29 Nov

    https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/news-parliament-2017/my-science-inquiry-launch-17-19/ The Committee are asking people in the science community to submit topics that they think the committee should look into. 200 word...
  11. Andy

    Comment, "How the Chan Zuckerberg Science Initiative plans to solve disease by 2100", Nature

    https://www.nature.com/articles/d41586-017-08966-z
  12. Cheshire

    Criticizing a Scientist’s Work Isn’t Bullying. It’s Science.

    http://www.slate.com/articles/health_and_science/science/2017/10/criticizing_a_scientist_s_work_isn_t_bullying.html?wpsrc=sh_all_mob_tw_top
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