10 ME/CFS Organizations Join Solve M.E.’s Letter to Congress Recommending Priorities for Federal COVID-19 Relief Package

From an email from Solve.


Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments.

Ten other ME/CFS organizations joined Solve M.E.’s efforts to urge Congress to consider additional priorities for the upcoming federal 2021 COVID-19 relief package to continue building on the momentum of the $1.15 billion investment announced in December. While we’re encouraged by the recently-announced congressional investment in long COVID research, our work is far from complete. We’ll keep fighting to ensure that post-viral illnesses become better understood, diagnosable, and treatable.

The letter recommends support for other government agencies—the Centers for Disease Control and Prevention (CDC), Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI)—as well as interagency collaboration and stakeholder engagement via a Long COVID Commission. Congress plays a crucial role in addressing unmet needs in medical education, access, and patient outcomes, all of which we believe can best be achieved by lending support to these agencies.

Solve M.E. warmly thanks our other signatories, including: #MEAction, Open Medicine Foundation, Institute for Neuro-Immune Medicine Nova Southeastern University, Bateman Horne Center, Simmaron Research, Whittemore Peterson Institute, Pandora, Minnesota ME/CFS Alliance, Florida ME/CFS Patient United, and Massachusetts ME/CFS & FM Association.

Read the letter in its entirety here.

 

Excellent news. It's such a precious moment for an initiative like this – not only are large amounts of funding for pandemic recovery potentially available, but the US's brand new broom is sweeping up so energetically in all kinds of areas!

 

Today's (Feb 5th 2021) statement from Walter Koroshetz, Director of the NIH.

"The knowledge gained through research on Long COVID syndrome may also positively impact the understanding, treatment, and prevention of ME/CFS and other chronic diseases."
"It will take a large-scale effort – from all of us – to help find critical answers to this devastating disease."

https://www.ninds.nih.gov/News-Even...ages/New-resources-large-scale-MECFS-research
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Moderator note: To discuss this and read more on it go to this thread:USA: NIH National Institute of Health

 

Here's the #MEAction article about this letter to Congress:

https://www.meaction.net/2021/02/04/were-asking-congress-to-not-forget-me/