A new support pack for anyone with ME/CFS going to hospital (MEA)

Discussion in 'Resources' started by Haveyoutriedyoga, Oct 4, 2024.

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  1. Ash

    Ash Senior Member (Voting Rights)

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    :heart:
     
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  2. obeat

    obeat Senior Member (Voting Rights)

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    @JemPD @Sasha
    I was never asked to justify or explain my level of disability . If I had been asked I would have said something like this: are you aware that the recent NICE guidelines recognize that ME/CFS is as debilitating as congestive heart failure and strongly advised that we stay within our energy limits to prevent serious deteriorations. This is why I need to lie down and not move very much.

    Keep it simple
     
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  3. JemPD

    JemPD Senior Member (Voting Rights)

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    thanks Obeat

    lol i have dozens of pairs, as i lose them in my own bed & have to wear every night! Wash them a couple dozen at a time!
     
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