A Study to Assess Anktiva in Patients With Long Covid-19. (INTERRUPT_LC)

[V.R.T.]

@Jonathan Edwards do you think Anktiva would risk revving up T cells and making things worse in a similar fashion to Checkpoint inhibitors if your T Cell hypothesis is correct?

 

[Jonathan Edwards]

From what I have read the chances of Anktiva being of value in ME/CFS are way less than one in a thousand. The chances of major harmful side effects much greater than that - maybe one in fifty.

 

[Jaybee00]

That Gustavo guy is zero evidence. I thought maybe he disappeared, but I guess not.

 

[Jaybee00]

@MelbME

 

[Mij]

"The accumulating clinical data and real-world outcomes strongly support continued evaluation and, ultimately, wider availability"

"We will continue to document outcomes rigorously and advocate for evidence-based expansion so that more patients can access this therapy responsibly and safely." Steven Alberts, MD

 

[Jaybee00]

Dr. Steven Alberts, MD

Can you please remind us again that you are a physician?

 

[Utsikt]

"We will continue to document outcomes rigorously and advocate for evidence-based expansion so that more patients can access this therapy responsibly and safely." Steven Alberts, MD

So they have already decided that it works? Where’s the data from controlled trials?

 

[ryanc97]

Dr. Steven Alberts, MD

Can you please remind us again that you are a physician?

It's a Nigerian scammer account.

 

[ryanc97]

Steven R. Alberts, MD has deleted his posts that I posted.

He is a scammer account. There are quite few claiming to prescribe Anktiva

 

[forestglip]

He is a scammer account. There are quite few claiming to prescribe Anktiva

To clarify, Dr. Alberts appears to be a real doctor, while the Twitter account was likely someone impersonating him, and it's now been deleted.

 

[Mij]

Really. I thought it was a bit odd that he signed his name after his posts.

 

[forestglip]

Several posts have been deleted that linked to now deleted social media posts.

 

[Hutan]

We have removed a number of posts about a personal trial of Anktiva that is currently in progress, for moderation consideration.