I want to read the thread, but i am operating from the thread title and first post for health reasons. This might be useful to somebody, because i haven't heard of these symptoms.
In my case, the word "horizontal" needs altering to address body state, not geometry. Or else the OI disease phenomenon needs to be distinguished from geometry.
Supine is always better than even a few seconds of sitting or standing, but my body generally does not consider supine to be horizontal enough.
My body generally considers side and prone to be 'more horizontal' (i.e. Better) than supine. However, very often, no position is horizontal. I would need to be "more horizontal than horizontal" to get no oi symptoms.
Arms have to be flat when supine or they cause orthostatic stress. A special ergonomic keyboard would accommodate this, but i have not been able to get one.
This would have 2 parts, one on each side, while i am supine, to prevent having to raise arms from bed surface to my 'lap', which i am currently doing. Being supine would still be a significant problem, because of oi and gastroparesis, but this would help the arm problem, which is oi.
i sometimes need to raise or not raise legs, but currently have no means to do that other than putting both legs on bed surface or one above the other while on side, both positions being needed at different times.
A doctor saw a never before seen blanching/flushing with clear line of demarcation when raising arm for only a brief period. This was apparently a sign of severe oi and raynaud's. I have the description someplace. The sign is pretty much always there i think, but probably more pronounced even raising arms to 'lap'.
Side/prone transitivity of postures is less obvious than stand<sit<supine<side.
In the many many hours it takes to rest before removing the dark towel over my eyes after sleeping, i often have to vary left side vs. mostly prone vs. prone and back for orthostatic intolerance.
This includes arm position.
I haven't figured it out completely. Arm might be in bad shape being up on my leg instead of flat, but it might help my overall orthostatic intolerance to have arm up. Or vice-versa. But there are times when global requires prone and arms flat to get partial relief.
I sometimes have right arm flat or on leg or between legs or behind my back if prone. Shape of arm and hand matter also as does head position.
Left side is better for gastroparesis stomach emptying than right or supine in my case, so side generally means left side.
Most of the time i cannot be supine due to gastroparesis or oi (thus can't use computer).
In case not obvious, I am bedridden almost al lthe time.
my brain turns off when vertical. my extreme executive dysfunction gets even worse.
the feeling is 'i HAVE to be horizontal'. being less horizontal causes overall worse health and progresses the disease.
Stuff that might or might not be related:
It often feels like body fluids are moving when i change posture.
Recently, head gets kind of dizzy or disoriented when i turn to left side from supine or more vertical postures.
When i shake my head, or shake a toothbrush, i get a physical brain moving sensation, which i can almost hear, as if it is hitting skull. Idk if that qualifies me for the looney bin these days, but it is what i experience.
I had a major head injury at age 4, never followed up on.
Capitalization errors will exist.
