1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 26th May 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice
  4. Forum upgrade planned for Sat/Sun June 7th/8th - Forum will be unavailable for around 1 day. More details.
    Dismiss Notice

Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Amw66, Dec 5, 2018.

Tags:
Page 2 of 2
  1. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    6,468
    Unfortunately there is no biological or objective evidence/research mentioned here either.

    I didn't come across anything that suggests the authors weren't anything other than sympathetic in how they presented their findings.
    However I'm not sure sceptic would find the results that interesting.
    And I think if one was so inclined, one might think that a lot of the impairment was down to mood and adolescents not doing things for no particular reason.
     
    Dolphin, Dec 28, 2018
    #21
    andypants, rvallee and Snow Leopard like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    6,468
    There may be some value in the paper in terms of the particular wordings adolescents and/or their parents used to describe symptoms, their impairments, etc.

    Two quotes I highlighted to myself were
    But I'm not sure they or other quotes are that interesting so I'm not sure I'm going to spend time highlighting them.

    So overall I found it a bit bland.
     
    Dolphin, Dec 28, 2018
    #22
    andypants, MEMarge, Amw66 and 1 other person like this.
  3. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    15,827
    Location:
    UK West Midlands
    Omg they’ve got 13 year olds on amitryptiline
     
    NelliePledge, Dec 28, 2018
    #23
    andypants, MEMarge and Webdog like this.
  4. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,302
    Tom Kindlon, Jan 24, 2019
    #24
    andypants, rvallee, MEMarge and 1 other person like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,956
    Yes, it' s the go- to for sleep and pain. The only prescription our paediatrician would countenance.
    Lots of kids on this .
     
    Amw66, Jan 25, 2019
    #25
    andypants and MEMarge like this.
  6. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    15,827
    Location:
    UK West Midlands
    Yuk I found it made me so sluggish and it wasn’t that effective after a while and I’m a middle aged chunky woman. I know drugs affect different people in different ways but I find it concerning they can’t come up with something better. Nortryptiline had less of a hangover for me so may be worth trying but it still made me too lethargic so I stopped in the end. I’m mild moderate though so my experience not that useful for any severe folks.
     
    NelliePledge, Jan 25, 2019
    #26
    andypants and MEMarge like this.
  7. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,956
    My concerns were what effect it would have on a developing brain . I could not find any info re testing on children.
     
    Amw66, Jan 25, 2019
    #27
    andypants, NelliePledge, MEMarge and 1 other person like this.
Page 2 of 2

Share This Page