Source: Solve ME/CFS Initiative Date: September 13, 2018 Time: 15:00-16:00 UTC URL: https://register.gotowebinar.com/register/7863577812392103170 Appropriately and Accurately Assessing Symptoms in Patients with ME ---------------------------------------------------------- Join Leonard A. Jason, PhD, as he provides an overview of the multi-year effort to develop patient symptom questionnaires for ME and CFS. He will explain why it is important to reliably assess domains of this illness so that more homogenous groups can be studied that are comparable across labs. Without such tools, efforts to define and characterize this illness will be hampered. In addition to speaking about the importance of reaching consensus on operationalizing data collection and deciding on thresholds for when symptoms should be counted as indicative of illness, he will explain why there is a need for more international consensus on a variety of other methodological issues including the research case definition. Leonard Jason is a professor of psychology at DePaul University in Chicago and a prolific researcher in the field of ME/CFS; particularly the epidemiology and prevalence of the disease. He serves as the Director of the Center for Community Research at DePaul, which includes studies on pediatric epidemiology, prospective studies of college students with mono, and QEEG research.
@Dechi "Leonard Jason is a professor of psychology at DePaul University in Chicago and a prolific researcher in the field of ME/CFS; particularly the epidemiology and prevalence of the disease. He serves as the Director of the Center for Community Research at DePaul, which includes studies on pediatric epidemiology, prospective studies of college students with mono, and QEEG research."
If ME proves due to a physical problem in the brain somehow, then I don't see any problem with trying to better understand that.
Appropriately and Accurately Assessing Symptoms in Patients with ME - SMCI-Webinar Leonard Jason Station: YouTube / SMCI Date: September 13, 2018 WebTV: https://www.youtube.com/watch?v=AFim2gz5VQI
Nice to see he and his team are doing work on pediatric ME; the Pediatric Epidemiology Study (Jason) that he says is due to be published soon will be interesting. Also that they have developed a pediatric version of the DSQ ( DSQ-Ped ) one for parents and one for the children. (And there is a spanish version of the DSQ).
I asked a question about this and it was answered. He said it would show up on an EEG or sleep study but computer processing on the data would be needed to see anything which they don't do. Hopefully the presentation is youtubed soon.