Attention grabbing media for spreading ME/CFS awareness

I think it'd be good to compile the best attention grabbing videos and other media (art, memes, poems, etc) about ME/CFS that are good for sharing on social media to spread awareness. Maybe things that would be good to share on May 12th.

I really like these two, both originally shared by @rvallee on this thread: 'MIRAME Arts: short video on prejudicial views of ME/CFS'

https://www.youtube.com/watch?v=o0IEUesvLXs

https://www.youtube.com/watch?v=br6PnwfnpF8

 

https://www.youtube.com/watch?v=gKWk99Fsd_o

https://www.youtube.com/watch?v=l1ufdoV5vYY

 

https://www.youtube.com/watch?v=X6f4zCe2ZtA

https://www.youtube.com/watch?v=VRCNEGsGcns

 

Not a video, but these online art exhibits deserves a mention. Shared by @Yann04
https://www.s4me.info/threads/a-quiet-storm-online-art-exhibition-on-severe-me.43867/

 

Thanks. I updated the thread to be about any media that's good for sharing to grab people's attention.

 

Berlin Buyers Club has some pretty cool stickers and posters. (It’s more axed on long COVID but includes ME/CFS as well) some examples of stickers

You can either buy the printed stickers from them (really cheap for something by a small cooperative) or download the designs online for free.
They also have many translated into Dutch, German, French, and Spanish
(I dunno how much this translates internationally but having stickers on lamposts, busstops etc. in population centers is pretty common form of activism in western europe)

 

Pretty much anything by Broken Battery! Eg.

https://www.youtube.com/watch?v=RiwX9Y0NbiQ

And…

*TRIGGER WARNING*
Videos detailing personal stories of significant harm and death due to mistreatment of ME patients

https://www.youtube.com/watch?v=yrBAlKtroBw

https://www.youtube.com/watch?v=cDeu_OlMivU

https://www.youtube.com/watch?v=pobf0RPlJuw

(Edited to add another link and because I managed to link a million things badly at first!)

 

For explaining ME/CFS to friends and family, I find the following combo far more effective than an “official” “neutral” description (Like the Wikipedia or CDC page):

https://www.whitneydafoe.com/mecfs/whatismecfs/ for how horrible it is to live with me/cfs
And George Monbiot’s article https://www.theguardian.com/comment...atigue-syndrome-me-treatments-social-services to explain systemic disbelief and oppression and so they know not to recommend exercise or therapy.

Even though these aren’t totally factually correct or necessarily well cited, I find that for my friends and family to have a reaction and take me seriously it’s more about having a story and showing emotions than just cold facts. And I think both those articles do a mix of both well.

 

Discussed in another thread, World ME Alliance has a website for adding your photo to a poster with one of these six messages.

 

https://www.youtube.com/watch?v=yFsaBQ7XXGU

https://www.hope4mefibro.org/discover-me-experience/

 

Thread: Film: This is ME (Festival edit), by Josh Pickup

 

Some of these are factually dodgy unfortunately.
And I’m getting really tired of describing PEM as only a worsening of symptoms.

 

Thanks Rainbow Cloud, much appreciated.

I’ve also created a trailer for that video which I’ve just put on YouTube shorts.

https://youtube.com/shorts/E8sym7aPcZc?si=kjJSjrGni7Y55rO3

 

@Adam pwme no thank YOU!!!