Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

Sly Saint · Jul 2, 2020

Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses or their beds. They have reported the existence of many problems when trying to access care and the medical system. They argue that many other services and opportunities easily provided to other Australians have been extremely difficult to access for them: “I feel like we're just invisible. Like this problem isn't even on anybody's radar because nobody knows we exist.” - Ricky Buchanan.
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Dr Maria Alejandra Pinero de Plaza is the lead investigator of this project, which involves a multidisciplinary group of investigators: Dr Michael Lawless, Dr Mandy Archibald, Ms Penelope McMillan, Ms Alexandra Mudd, and Professor Alison Kitson. Ms Penelope McMillan (Chair, ME/CFS South Australia and a Director of ME/CFS Australia) is involved in this study as a consumer co-researcher, at peer level with the Flinders researchers. She shares an interest in further describing this population; particularly, those who are living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (includes CFS, ME or ME/CFS diagnoses), which has been defined as a severe, complex, acquired illness with numerous symptoms related mainly to the dysfunction of the brain, gastrointestinal, immune, endocrine and cardiac systems. It impacts the mobility, frailty levels and healthy aging of many Australians.
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details here
http://sacfs.asn.au/news/2020/07/07_02_survey_making_the_invisible_visible.htm

@Penelope McMillan

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Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

Sly Saint Senior Member (Voting Rights)

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Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

Sly Saint Senior Member (Voting Rights)

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